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Review of the 2013 CDC/CSTE cancer cluster investigation guidelines : evaluation of facilitators and barriers to implementation and identification of resources to implement updated guidelines
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February 2022
[PDF-400.22 KB]
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Description:In 2010, the Council on State and Territorial Epidemiologists (CSTE) collaborated with the Centers for Disease Control and Prevention (CDC) to convene a workgroup of experts from state, tribal, local, and territorial (STLT) health departments to revise the then current 1990 “Guidelines for Investigating Clusters of Health Events.” To do so, CSTE conducted an assessment with state and territorial epidemiologists to better understand the resources needed to investigate cancer cluster concerns. The workgroup utilized the findings of the assessment and a literature review to inform the development of the 2013 Guidelines, “Investigating Suspected Cancer Clusters and Responding to Community Concerns: Guidelines from CDC and the Council of State and Territorial Epidemiologists”.
Presently, CDC is working to update the 2013 Guidelines in accordance with Trevor’s Law, which is included in the Frank R. Lautenberg Chemical Safety for the 21st Century Act. Updating the 2013 Guidelines will provide STLT health departments with the most current information on investigation tools and approaches for assessing and responding to potential cancer clusters (CDC, 2019).
In 2021, CSTE, in collaboration with the CDC National Center for Environmental Health (NCEH) and the Agency for Toxic Substances and Disease Registry (ATSDR), convened a workgroup to 1) assess facilitators and barriers to implementing the 2013 Guidelines and 2) determine what, if any tools, trainings, or non-financial resources would assist STLT health departments in implementing the updated guidelines. The workgroup was composed of staff from STLT health departments recruited because of their experience in conducting suspected cancer cluster investigations. To accomplish its work, the workgroup held three virtual, video conference meetings on April 15, 2021, May 20, 2021, and June 25, 2021.
During the initial workgroup meeting, workgroup members identified numerous opportunities to update the 2013 Guidelines, including facilitators and barriers to implementation in STLT health departments. These fell into two main topic areas: methodologic issues and communication challenges. As a result, the second and third workgroup meetings concentrated on methodologic issues and communication concerns, respectively.
This report was prepared for the Council of State and Territorial Epidemiologists (CSTE) by Brad Hutton from Hutton Health Consulting, LLC with support from Cooperative Agreement number 1 NU38OT000297-03-00 from the Centers of Disease Control and Prevention (CDC) and Agency for Toxic Substances and Disease Registry (ATSDR). The findings and conclusions in this report are solely the responsibility of the author and do not represent the official views of CDC/ATSDR.
CSTE_Cancer_Cluster_Guidelin.pdf
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Pages in Document:15 numbered pages
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