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Scope of Care in the First Four Years of Life for Individuals Born with Myelomeningocele: A Single Institution Experience
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2021
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Source: J Pediatr Rehabil Med. 14(4):667-673
Details:
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Alternative Title:J Pediatr Rehabil Med
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Personal Author:
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Description:Purpose:
Children with myelomeningocele are known to be consumers of substantial healthcare resources, with many early hospital encounters. The purpose of this study was to survey the extent of medical and surgical care that patients with myelomeningocele receive during the first four years of life.
Methods:
Clinical and demographic data were collected on newborn infants with open myelomeningocele from the Children’s of Alabama Spina Bifida Web Tracker, a prospective, comprehensive spina bifida database. Additional data pertaining to all hospital admissions, surgical procedures, and clinic visits were collected from the medical record.
Results:
One hundred and fourteen subjects with a primary diagnosis of myelomeningocele between 2004 and 2015 were included. Males slightly predominated (55%), 72% were Caucasian, 11% Hispanic/Latino; 28% had a mid-lumbar functional lesion level.
Conclusion:
Children with myelomeningocele need multiple hospitalizations, surgeries, and medical encounters in the first 4 years of life. These data will be valuable when counselling new parents and prospective parents of children with this condition.
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Subjects:
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Source:
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Pubmed ID:34864701
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Pubmed Central ID:PMC9003993
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Document Type:
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Funding:
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Volume:14
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Issue:4
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Main Document Checksum:
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Download URL:
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File Type:
[PDF-80.40 KB]
