Factors Associated with Ambulation and Transfer Ability: A Study from the National Spina Bifida Patient Registry

Details

• Alternative Title:
  Am J Phys Med Rehabil
• Personal Author:
  Benjamin, Nicholas L. ; McKernan, Gina ; Izzo, Sara ; Crytzer, Theresa M. ; Clayton, Gerald H. ; Wilson, Pamela E. ; Houtrow, Amy J. ; Dicianno, Brad E.
• Description:
  Objectives
  
  This study used a Spina Bifida (SB) Electronic Medical Record (EMR) and the National Spina Bifida Patient Registry (NSBPR) to explore the relationship between neurosurgical/orthopedic surgeries and other variables on ambulation and transfer ability over time in individuals with SB.
  
  Design
  
  This study was an analysis of longitudinal data collected within the NSBPR and SB EMR. Logistic regression models were used to determine which variables were associated with ambulation/transfer ability in the myelomeningocele (MMC) and non-MMC populations.
  
  Results
  
  Longitudinal data from 806 individuals were collected. In the MMC group, decreased ambulation ability was associated with higher motor levels, tethered cord releases, spine/scoliosis surgeries, hip orthopedic surgeries, and having supplemental insurance. Increased ambulatory ability was associated with lower motor levels, tibial torsion/related surgeries, ankle/foot surgeries, being female, and being non-Hispanic/Latinx. Decreased transfer ability was associated with being Hispanic/Latinx and having higher motor levels. Lower motor level and ankle/foot surgeries were associated with increased transfer ability. No significant associations were found in the non-MMC group.
  
  Conclusions
  
  Motor level is an important predictor of ambulation and transfer ability in MMC. Surgeries distal to the knee were associated with higher levels of function; surgeries proximal to the knee were associated with lower functional levels.
  
  
• Subjects:
  Article Female Humans Male Meningomyelocele Myelomeningocele Registries Rehabilitation Spina Bifida Spinal Dysraphism Spine Walking Wheelchair

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• Source:
  Am J Phys Med Rehabil. 101(7):652-658
• Pubmed ID:
  34508059
• Pubmed Central ID:
  PMC8904640
• Document Type:
  Journal Article
• Funding:
  U01DD001080/ACL/ACL HHSUnited States/ ; U01DD001072/ACL/ACL HHSUnited States/ ; U01 DD001069/DD/NCBDD CDC HHSUnited States/ ; U01 DD001078/DD/NCBDD CDC HHSUnited States/ ; U01 DD000774/DD/NCBDD CDC HHSUnited States/ ; U01 DD000736/DD/NCBDD CDC HHSUnited States/ ; U01DD001073/ACL/ACL HHSUnited States/ ; U01 DD001080/DD/NCBDD CDC HHSUnited States/ ; U01DD001063/ACL/ACL HHSUnited States/ ; U01DD001074/ACL/ACL HHSUnited States/ ; U01DD001057/ACL/ACL HHSUnited States/ ; U01 DD000738/DD/NCBDD CDC HHSUnited States/ ; U01DD001065/ACL/ACL HHSUnited States/ ; U01 DD001074/DD/NCBDD CDC HHSUnited States/ ; U01 DD001082/DD/NCBDD CDC HHSUnited States/ ; U01 DD001093/DD/NCBDD CDC HHSUnited States/ ; U01 DD001071/DD/NCBDD CDC HHSUnited States/ ; U01 DD001063/DD/NCBDD CDC HHSUnited States/ ; U01 DD000740/DD/NCBDD CDC HHSUnited States/ ; U01 DD001073/DD/NCBDD CDC HHSUnited States/ ; U01DD001071/ACL/ACL HHSUnited States/ ; U01DD001062/ACL/ACL HHSUnited States/ ; U01DD001082/ACL/ACL HHSUnited States/ ; U01 DD001057/DD/NCBDD CDC HHSUnited States/ ; U01 DD001072/DD/NCBDD CDC HHSUnited States/ ; U01 DD001062/DD/NCBDD CDC HHSUnited States/ ; U01DD001078/ACL/ACL HHSUnited States/ ; U01DD001069/ACL/ACL HHSUnited States/ ; U01 DD000766/DD/NCBDD CDC HHSUnited States/ ; U01 DD001065/DD/NCBDD CDC HHSUnited States/ ; U01 DD001091/DD/NCBDD CDC HHSUnited States/ ; U01DD001091/ACL/ACL HHSUnited States/ ; U01 DD000743/DD/NCBDD CDC HHSUnited States/
• Volume:
  101
• Issue:
  7
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:070e6e3cd1627886becea6f4b96125ff8f175138c471a654f0583bc532a0d019
• Download URL:
  https://stacks.cdc.gov/view/cdc/115351/cdc_115351_DS1.pdf
• File Type:
  [PDF - 724.40 KB ]