Factors Associated with Ambulation and Transfer Ability: A Study from the National Spina Bifida Patient Registry

Details

• Alternative Title:
  Am J Phys Med Rehabil
• Personal Author:
  Benjamin, Nicholas L. ; McKernan, Gina ; Izzo, Sara ; Crytzer, Theresa M. ; Clayton, Gerald H. ; Wilson, Pamela E. ; Houtrow, Amy J. ; Dicianno, Brad E.
• Description:
  Objectives ; This study used a Spina Bifida (SB) Electronic Medical Record (EMR) and the National Spina Bifida Patient Registry (NSBPR) to explore the relationship between neurosurgical/orthopedic surgeries and other variables on ambulation and transfer ability over time in individuals with SB. ; Design ; This study was an analysis of longitudinal data collected within the NSBPR and SB EMR. Logistic regression models were used to determine which variables were associated with ambulation/transfer ability in the myelomeningocele (MMC) and non-MMC populations. ; Results ; Longitudinal data from 806 individuals were collected. In the MMC group, decreased ambulation ability was associated with higher motor levels, tethered cord releases, spine/scoliosis surgeries, hip orthopedic surgeries, and having supplemental insurance. Increased ambulatory ability was associated with lower motor levels, tibial torsion/related surgeries, ankle/foot surgeries, being female, and being non-Hispanic/Latinx. Decreased transfer ability was associated with being Hispanic/Latinx and having higher motor levels. Lower motor level and ankle/foot surgeries were associated with increased transfer ability. No significant associations were found in the non-MMC group. ; Conclusions ; Motor level is an important predictor of ambulation and transfer ability in MMC. Surgeries distal to the knee were associated with higher levels of function; surgeries proximal to the knee were associated with lower functional levels.
• Subjects:
  • Article
  • Myelomeningocele
  • Rehabilitation
  • Spina Bifida
  • Spinal Dysraphism
  • Walking
  • Wheelchair
  • Registries
  • Female
  • Humans
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• Source:
  Am J Phys Med Rehabil. 101(7):652-658
• Pubmed ID:
  34508059
• Pubmed Central ID:
  PMC8904640
• Document Type:
  Journal Article
• Funding:
  U01DD001080/ACL/ACL HHSUnited States/ ; U01DD001072/ACL/ACL HHSUnited States/ ; U01 DD001069/DD/NCBDD CDC HHSUnited States/ ; U01 DD001078/DD/NCBDD CDC HHSUnited States/ ; U01 DD000774/DD/NCBDD CDC HHSUnited States/ ; U01 DD000736/DD/NCBDD CDC HHSUnited States/ ; U01DD001073/ACL/ACL HHSUnited States/ ; U01 DD001080/DD/NCBDD CDC HHSUnited States/ ; U01DD001063/ACL/ACL HHSUnited States/ ; U01DD001074/ACL/ACL HHSUnited States/ ; U01DD001057/ACL/ACL HHSUnited States/ ; U01 DD000738/DD/NCBDD CDC HHSUnited States/ ; U01DD001065/ACL/ACL HHSUnited States/ ; U01 DD001074/DD/NCBDD CDC HHSUnited States/ ; U01 DD001082/DD/NCBDD CDC HHSUnited States/ ; U01 DD001093/DD/NCBDD CDC HHSUnited States/ ; U01 DD001071/DD/NCBDD CDC HHSUnited States/ ; U01 DD001063/DD/NCBDD CDC HHSUnited States/ ; U01 DD000740/DD/NCBDD CDC HHSUnited States/ ; U01 DD001073/DD/NCBDD CDC HHSUnited States/ ; U01DD001071/ACL/ACL HHSUnited States/ ; U01DD001062/ACL/ACL HHSUnited States/ ; U01DD001082/ACL/ACL HHSUnited States/ ; U01 DD001057/DD/NCBDD CDC HHSUnited States/ ; U01 DD001072/DD/NCBDD CDC HHSUnited States/ ; U01 DD001062/DD/NCBDD CDC HHSUnited States/ ; U01DD001078/ACL/ACL HHSUnited States/ ; U01DD001069/ACL/ACL HHSUnited States/ ; U01 DD000766/DD/NCBDD CDC HHSUnited States/ ; U01 DD001065/DD/NCBDD CDC HHSUnited States/ ; U01 DD001091/DD/NCBDD CDC HHSUnited States/ ; U01DD001091/ACL/ACL HHSUnited States/ ; U01 DD000743/DD/NCBDD CDC HHSUnited States/
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• Volume:
  101
• Issue:
  7
• Download URL:
  https://stacks.cdc.gov/view/cdc/115351/cdc_115351_DS1.pdf
• File Type:
  [PDF - 724.40 KB]
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:070e6e3cd1627886becea6f4b96125ff8f175138c471a654f0583bc532a0d019