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Integrating child health information systems while protecting privacy; a review of four state approaches
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  • Alternative Title:
    Issue report : integrating child health information systems and privacy
  • Description:
    State public health agencies leading the development of integrated child health information systems in the United States are finding ways to construct integrated child health information systems based on their own needs and resources. Differing approaches used by the Missouri Department of Health and Senior Services, the Oregon Department of Human Services, the Rhode Island Department of Health, and the Utah Department of Health can serve as model systems for other states working to build integrated child health information systems. All of these agencies were funded by the Maternal and Child Health Bureau of the Health Resources and Services Administration (HRSA/MCHB) to build integrated child health information systems. Additionally, the strengths of these varying architectures provide insight on building an Electronic Health Record (EHR) at the national level. The implementation of the Health Insurance Portability and Accountability Act (HIPAA) Privacy Rule and other privacy laws complicated the design of integrated health information systems, but states are discovering solutions to these challenges, allowing them to move forward with their integrated child health information systems. Solutions include building privacy protections into the systems, improving information technology (IT) infrastructure, assessing vulnerabilities in their systems, and educating system users about HIPAA and other privacy issues. While these four states were able to implement information systems that adequately safeguard protected health information, attaining compliance with HIPAA and other privacy laws did not come without spending human and financial resources.

    This project was made possible with funding from the Centers for Disease Control and Prevention Cooperative Agreement to Improve the Nation's Public Health Infrastructure with State Public Health Agencies/Systems (#U50/CCU313903-06).

    Includes bibliographical references.

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