Report of the National Firefighter Registry Subcommittee, as approved by the NIOSH Board of Scientific Counselors : review, advice, and recommendations for the registry protocol and questionnaire

Details

• Corporate Authors:
  National Institute for Occupational Safety and Health. Board of Scientific Counselors. National Firefighter Registry Subcommittee
• Description:
  Report of the first National Firefighter Registry Subcommittee meeting, delivered to the 2nd meeting.
  
  History: The National Firefighter Registry (NFR) and the NFR Subcommittee (NFRS) was established based on the Firefighter Cancer Registry Act of 2018 passed by Congress. The National Institute for Occupational Safety and Health (NIOSH) was directed to create a voluntary registry of U.S. firefighters for the purpose of monitoring cancer incidence and risk factors among the U.S. fire service. The NFRS was asked to review the protocol and Appendices A-F and provide written comments. Prior to the subcommittee meeting, the NFRS provided over 12 pages of written comments to the NIOSH team (Attachment 1). Many, but not all, of the written comments were discussed at the subcommittee meeting on May 15, 2020. Hence, it is advised that the NIOSH team review all the provided comments and make changes to the protocol and appendices as they deem appropriate.
  
  Meeting overview and follow-up: The NFRS held a virtual meeting (due to the pandemic) with the NIOSH Team on May 15, 2020, to provide advice and recommendations regarding the NFR protocol. Attachment 2 provides the list of those attending the meeting. In addition, the NIOSH team requested input on six overarching questions, and the co-chairs added three for additional considerations (Attachment 3). These questions included issues related to communication and enrollment of participants, estimating lifetime exposures, use of protective equipment, cancer risk factors, possible additional information needed for linking with state and territorial cancer registries, pilot testing elements of the protocol, approach to implementing recruitment of the targeted and open cohort and expectation for meeting the recruitment goals. A 94-page transcript of the meeting was provided to the co-chairs. The charge to the Co-chairs was to review and condense the meeting transcript to the most salient issues, prepare a report and draft relevant advice and recommendations. The recommendations require formal approval by the NFRS. After review and final approval of the report by the NFRS, the NIOSH Board of Scientific Counselors (BSC) will review and discuss it in an open meeting and decide what to send forward to NIOSH.
  
  Progress of the NFR: The NIOSH Team presented an update on the progress of the NFR, project protocol overview, and the enrollment questionnaire. This progress includes establishing the NFRS, preparing a draft of the protocol, preparing a participant population recruitment design and flowchart, informational and promotional materials, providing a list of stakeholders, an informed consent document, and development of a user profile questionnaire and an enrollment questionnaire. The assurance of confidentiality form is currently under development. The NFRS was quite impressed with the progress made by the NIOSH team as well as the overall study design and approach.
  
  Report-NFRS-approvedNIOSH-BSC-508.pdf
  
  
• Subjects:
  Congresses As Topic Firefighters Occupational Health Public Health Registries United State Government Agencies
• Document Type:
  Text
• Genre:
  Conference Publications
• Place as Subject:
  United States
• CIO:
  National Institute for Occupational Safety and Health (NIOSH)
• Pages in Document:
  6 numbered pages
• NIOSHTIC Number:
  nn:na
• Collection(s):
  National Institute for Occupational Safety and Health
• Main Document Checksum:
  urn:sha-512:fdcdd85dd59819b0cf6b31b89092d143d367715e54db0d77be8ef4f0301bfedb19bd0a686ad16b87a329a1cdc3de144896e5cf713745b00d911d2c207ed8e3db
• Download URL:
  https://stacks.cdc.gov/view/cdc/113897/cdc_113897_DS1.pdf
• File Type:
  [PDF - 141.36 KB ]