Soy Diferente: A Qualitative Study on the Perceptions of Recovery Following Traumatic Brain Injury Among Spanish-speaking US Immigrants

Details

• Alternative Title:
  Disabil Rehabil
• Personal Author:
  Pappadis, Monique R. ; Sander, Angelle M. ; Struchen, Margaret A. ; Mazzei, Diana Kurtz
• Description:
  Purpose:
  
  To explore the impact of traumatic brain injury (TBI) on the quality of life (QoL) and self-concept of Spanish-speaking US Hispanic immigrants with TBI.
  
  Materials and methods:
  
  A prospective, qualitative study conducted in a county level I trauma center and community. Semi-structured interviews on QoL and self-concept following TBI were conducted with twenty-four Spanish-speaking US Hispanic immigrants with TBI living in the community at least 6 months following injury.
  
  Results:
  
  Perceived facilitators of QoL included faith, hopefulness in recovery, empathy for others, and support from others. Perceived barriers to QoL mentioned were symptoms/consequences of injury, employment/financial changes, loss of independence, fear/uncertainty, stigma/shame, lack of medical care, and decreased social integration. Participants described their self-concept after TBI as either a maintained self or loss of self. Those who viewed themselves differently reported physical and emotional changes, gender role conflict, loss of self-worth, and total loss due to the TBI.
  
  Conclusions:
  
  Spanish-speaking US Hispanic immigrants held a strong faith and positive outlook after TBI in spite of the significant barriers to recovery. A need exists for programs to support creatively the recovery of Spanish-speaking US Hispanic immigrants with limited access to care and resources.
  
  
• Subjects:
  Brain Injuries, Traumatic Emigrants And Immigrants Hispanic Or Latino Humans Language Prospective Studies Quality Of Life
• Source:
  Disabil Rehabil. 44(11):2400-2409
• Pubmed ID:
  33108224
• Pubmed Central ID:
  PMC8109840
• Document Type:
  Journal Article
• Funding:
  90RT5007/ACL/ACL HHSUnited States/ ; P30 AG059301/AG/NIA NIH HHSUnited States/ ; 90DP0028/ACL/ACL HHSUnited States/ ; U48 DP000028/DP/NCCDPHP CDC HHSUnited States/ ; L60 MD009326/MD/NIMHD NIH HHSUnited States/ ; K01 AG065492/AG/NIA NIH HHSUnited States/ ; 90DPTB0016/ACL/ACL HHSUnited States/ ; P30 AG024832/AG/NIA NIH HHSUnited States/
• Volume:
  44
• Issue:
  11
• Collection(s):
  CDC Public Access
• Main Document Checksum:
  urn:sha256:dc8b8d28b072465a1463276665399a2fd93bc965952db43f7b4c5437041bc0ad
• Download URL:
  https://stacks.cdc.gov/view/cdc/106201/cdc_106201_DS1.pdf
• File Type:
  [PDF - 266.58 KB ]