The goals of stroke care are to reduce the incidence of, and illness and death from, stroke while improving quality of life for stroke survivors. Stroke systems of care coordinate and promote access to optimal care from the identification, reduction, and treatment of risk factors through prevention of recurrent stroke and rehabilitation; promote changes in hospital policies and systems to improve delivery of care; and ultimately improve patient outcomes. Traditionally public health has not focused on quality of care (QoC) for acute events of a chronic disease, such as stroke. Yet, through the core functions of public health — assessment, policy development, and assurance (
State public health agencies conduct a variety of activities that can improve QoC for stroke and heart disease. These include reporting state-mandated statistics for measuring QoC, such as in-hospital death rates for stroke (
In 2001, Congress provided funding to the Centers for Disease Control and Prevention (CDC) for the Paul Coverdell National Acute Stroke Registry (PCNASR) to implement state-based stroke registries. These registries track and measure QoC for stroke patients from prehospital emergency medical services (EMS) through acute care, secondary prevention, and rehabilitation, and they promote changes in hospital policies and systems to improve delivery of care (
State health departments continuously evaluate their QI interventions (e.g., dysphagia screening to prevent aspiration pneumonia and initiation of secondary prevention) that improve care for stroke patients. Results from the prototype registries identified gaps in acute care for stroke, underscoring the importance of continuously monitoring QoC indicators and the need for QI interventions (
During the past decade, federal agencies collaborated with the American College of Surgeons and other partners to oversee development of trauma care registries to improve QoC for both individual trauma patients and systems of trauma care. This effort is an essential component of effective statewide trauma care. Because trauma is an important public health problem (
The Institute of Medicine (IOM) recommended that state health departments' public health duties (
One effective way to improve QoC is to share QI interventions and the outcomes of these interventions. State health departments can lead this effort through a collaborative model of communication with providers of care. In states participating in the PCNASR, state public health departments coordinate the overall effort to improve QoC for stroke through the program's state QI directors.
Continuous QI requires substantial resources and commitment from state and local health departments, EMS systems, individual providers in the chain of stroke care, and communities. State health departments can coordinate these entities, as in North Carolina through the North Carolina Collaborative Stroke Registry and the North Carolina Office of Emergency Medical Services.
State health departments play a leading role in developing and implementing policies to improve health care. Using evidence-based practice, CDC, The Joint Commission, and the American Heart Association/American Stroke Association have developed new QI measures in stroke care. Putting new guidelines into practice in the health care system relies on the states' leadership in integrating new information into their policies and plans.
State leadership is irreplaceable in advocating for evidence-based health policy. State health departments should be powerful advocates of new regulations to improve QoC and are the agencies primarily responsible for implementing these regulations. For example, the Coordinated Quality Improvement Program was created under the Washington State Department of Health during the 1993 legislative session; the New York State Health Information and Quality Improvement Act was enacted and signed into law in New York in 2000; and both Massachusetts and New York have state-level legislation regarding certification of primary stroke centers.
One of the most effective ways to improve care for stroke is to engage and continually collaborate with critical stakeholders (
The ultimate goal of engaging stakeholders in stroke care is to implement effective policies, practices, and programs that prevent stroke, control risk factors, and improve the QoC and outcomes of stroke patients. State health departments should further this goal by implementing stroke programs that increase awareness of symptoms and risk factors for stroke while measuring disease burden within the state.
The American Stroke Association's Task Force on the Development of Stroke Systems has developed recommendations for establishing systems of stroke care (
The North Carolina EMS Stroke Toolkit Project (
The PCNASR (
The PCNASR uses evidence-based standards, such as screening for dysphagia, prophylaxis for deep vein thrombosis, and initiation of secondary prevention, to prevent common complications of stroke, thus fulfilling the functions of assessment and assurance.
These projects require use of public health informatics to improve the flow of information among different parts of the health information system. We anticipate a growing need for state health departments to monitor QoC by using agile data systems based on a solid public health informatics infrastructure. State health departments already engaged in developing key components of stroke systems of care are strategically positioned to integrate these components.
PCNASR provides a model for other public health efforts to improve the QoC for cardiovascular diseases, such as acute coronary syndrome and heart failure. In 2004, the American Heart Association updated its guidelines for managing ST-elevation myocardial infarction (STEMI) (
In 2004, the Organized Program to Initiate Lifesaving Treatment in Hospitalized Patients with Heart Failure (OPTIMIZE-HF) registry examined use of performance measures for improving QoC for patients with heart failure. Adherence to performance measures did not correlate well with death or rehospitalization performance measures for heart failure in 259 U.S. hospitals (
The PCNASR aims to integrate the stroke-related activities of EMS, hospitals, and providers of stroke care to promote stroke systems of care and to enhance QoC for stroke patients. Integration of these services and providers could extend to QoC for acute coronary syndrome and heart failure patients in developing QI-focused systems of care for these diseases as well. State public health departments can coordinate efforts to improve QoC for these cardiovascular diseases.
We thank state health departments and their partners in Georgia, Illinois, Massachusetts, and North Carolina and CDC staff who have devoted much time and effort to implementing the Paul Coverdell National Acute Stroke Registry.
Stakeholders in Acute Stroke and Their Focus Areas
| Scientists | Present and review articles in journals, and review data that detail vital findings related to stroke systems of care. |
| Health care providers (i.e., persons with direct patient contact) | Implement evidence-based practices of best care. |
| Emergency responders | Prioritize calls of patients with signs and symptoms of stroke. |
| Stroke organizations (e.g., American Heart Association/American Stroke Association, National Stroke Association, Brain Attack Coalition, Stroke Belt Consortium) | Improve care through research, education, advocacy, and development of science-based standards. |
| Local, state, and federal governments (state health departments, Centers for Disease Control and Prevention [CDC], National Institutes of Health) | Develop initiatives in stroke prevention and quality of care. |
| Agencies that produce national health data (e.g., CDC's National Center for Health Statistics, National Institutes of Health's Division of Populations and Prevention Services) | Produce up-to-date data on prevalence, incidence, burden, and mortality. |
| National advocacy organizations (e.g., Brain Attack Coalition, National Stroke Association, American Heart Association/American Stroke Association) | Initiate legislative activities, and educate legislators on the public health impact and challenges of stroke. |
| Professional and nonprofit organizations (The Joint Commission, American Stroke Association) | Develop initiatives in quality of care. |
| Community initiatives and organizations (CDC's Racial and Ethnic Approaches to Community Health) | Eliminate racial and ethnic disparities in health (e.g., cardiovascular disease). |
| Economists | Evaluate dollars saved by improving quality of stroke care (e.g., by reducing costs for care associated with recurrent events). |
| Pharmaceutical companies | Provide products for patients hospitalized with stroke. |
| Media outlets | Provide public service announcements that emphasize stroke education for all age groups, including children. |
| Organizations in areas related to stroke (e.g., physical activity, nutrition, tobacco use, alcohol use, hypertension, hypercholesterolemia, atrial fibrillation) | Partner with organizations that address multiple risk factors to broaden effective prevention efforts in public health. |
The opinions expressed by authors contributing to this journal do not necessarily reflect the opinions of the U.S. Department of Health and Human Services, the Public Health Service, Centers for Disease Control and Prevention, or the authors' affiliated institutions. Use of trade names is for identification only and does not imply endorsement by any of the groups named above.