Rigorous outcome evaluation is essential to monitor progress toward achieving goals and objectives in comprehensive cancer control plans (CCCPs).
This report describes a systematic approach for an initial outcome evaluation of a CCCP.
Using the Centers for Disease Control and Prevention evaluation framework, the evaluation focused on (1) organizing cancer plan objectives by anatomic site and risk factors, (2) rating each according to clarity and data availability, (3) the subsequent evaluation of clearly stated objectives with available outcome data, and (4) mapping allocation of implementation grants for local cancer control back to the CCCP objectives.
South Carolina.
Evaluation outcomes included (1) a detailed account of CCCP objectives by topic area, (2) a systematic rating of level of clarity and availability of data to measure CCCP objectives, (3) a systematic assessment of attainment of measurable objectives, and (4) a summary of how cancer control grant funds were allocated and mapped to CCCP objectives.
A system was developed to evaluate the extent to which cancer plan objectives were measurable as written with data available for monitoring. Twenty-one of 64 objectives (33%) in the South Carolina's CCCP were measurable as written with data available. Of the 21 clear and measurable objectives, 38% were not met, 38% were partially met, and 24% were met. Grant allocations were summarized across CCCP chapters, revealing that prevention and early detection were the most heavily funded CCCP areas.
This evaluation highlights a practical, rigorous approach for generating evidence required to monitor progress, enhance planning efforts, and recommend improvements to a CCCP.
The Centers for Disease Control and Prevention (CDC) partners with US states, tribes, and territories to develop and implement comprehensive cancer control plans (CCCPs).
However, despite numerous reports of CCCP formative evaluations describing coalition models and highlighting successes,
Building on these growing efforts in CCCP evaluation, the present report describes an initial process and outcome evaluation of South Carolina's CCCP that was conducted to generate evidence for monitoring progress, enhancing planning efforts, and recommending improvements to the CCCP. The evaluation plan was guided by the CDC's Framework for Program Evaluation
South Carolina's CCCP was first published in 2005.
The evaluation team was led by university-based researchers and included members from the state's cancer registry and cancer control program. To ensure the evaluation plan was rooted in the reality of ongoing CCCP implementation activities of the South Carolina Cancer Alliance (SCCA), the organization charged with devising and implementing the plan, the evaluation team communicated with SCCA leadership, workgroups, and general membership throughout the 18-month evaluation process (July 1, 2009, to December 31, 2010). In the first 6 months of the evaluation, the evaluation team worked with SCCA leadership groups to ensure that the evaluation methodology was consistent with the organization's needs and expectations. In months 7 to 12, more than 100 key stakeholders with content area expertise and interest were contacted by phone or e-mail. In months 10 to 16, after it became clear that consensus within the organization's workgroups would be necessary to accurately describe SCCA activities and accomplishments, the evaluation team convened these workgroups with the sole purpose to collectively describe their progress toward the CCCP objectives. Input from broader statewide constituents was received at 4 town hall meetings and at 1 statewide SCCA meeting during months 12 to 18. Immediately after new information was obtained from stakeholders, the new information was recorded in an evaluation-tracking database. Stakeholder feedback informed all aspects of the evaluation, which included the needs and expectations for the evaluation, insight into stakeholder activities undertaken to achieve CCCP objectives and barriers/facilitators they encountered, history of how the CCCP had evolved over time, and suggestions for future direction for the upcoming 5-year CCCP.
The initial evaluation task was to dissect the CCCP's goals, objectives, and strategies. A database constructed to consolidate key data was populated with information such as current/historical goals, objectives, and strategies; history of modifications; data sources for tracking indicators; benchmarks; outcomes; and key words. This database was the central repository for tracking evaluation findings. To account for objectives and strategies that were modified, added, or removed since the initial CCCP, a numeric classification system was developed to track each indicator's initial and current location in the CCCP. During this process, 2 of the 8 chapters were identified as outliers: (1) the Genetics chapter had never been directly addressed and (2) the Health Disparities chapter was primarily a compilation of objectives/strategies from other CCCP chapters, so its content overlapped with content elsewhere in the plan. These 2 chapters were thus excluded from subsequent evaluation activities. These initial evaluation steps of organizing the fluid cancer plan took place in the first 3 months of the evaluation process.
Each objective was rated on 2 dimensions: the extent to which it (1) was measurable as written and (2) had available outcome data. This step took place in months 7 to 12 of the evaluation process. The first dimension measured the objective's clarity and precision. An “A,” “B,” or “C” rating referred to objectives that could be evaluated directly as written, with minor changes, or only with major revisions, respectively. Examples of “minor changes” were defining baseline and benchmark values or more precisely characterizing the target population. An example of a “major change” was splitting an objective that comprised multiple objectives into separate components. Objectives were also rated on the availability of outcome data. A “1,” “2,” or “3” rating meant outcome data were readily available, available with secondary data analyses, or would require new primary data collection, respectively.
These 2 separate ratings were combined into a single summary measure to jointly characterize the extent that an indicator was clear/precise and had available outcome data to assess achievement. An “A1” rating meant an objective was clear, precise and had available data to evaluate progress. In contrast, a “C3” rating lacked both clarity/precision and available outcome data. Each objective was rated independently by 2 reviewers, with differences resolved by consensus.
The rating system was used to prioritize the objectives evaluated for outcomes. Because of resource constraints, outcome data were obtained and summarized solely for the indicators rated “A1,” namely, those that were clearly written and could be linked to available outcome data. Indicators that could be measured (ie, those rated A1) were then categorized as follows: “little or no progress,” no evidence of measurable progress to meet the objective; “partially met or some progress,” evidence of progress that could result in achievement of the objective; and “met,” the objective was accomplished.
In South Carolina, a primary method of CCCP implementation is via allocation of grant funds for local projects. These funds are allocated by the South Carolina Department of Health and Environmental Control (SC DHEC) Cancer Control Program in 2 separate funding streams. One funding stream runs through the SCCA, which awards competitive grants to SCCA partners for projects that address CCCP objectives (SCCA grants). The other funding stream is to the state's 8 public health regions through a regional mini-grant mechanism (SC DHEC grants) focused exclusively on prevention and early detection activities. These funding streams generate “on the ground” cancer control activity. Therefore, stakeholders felt it was important to map the funded projects back to the CCCP indicators to assess the effectiveness of distributing funding across the CCCP elements.
Projects funded through the SCCA and SC DHEC mini-grant mechanisms were ascertained for the period July 1, 2005, to June 30, 2010. Data collected from the funding agency, grantee, or both included title, funding period, region served, statement of work, and a description of project components. The scarce data available for most grants precluded a summary of project outcomes. To describe the distribution of funding across the CCCP, the topics of the funded grants were mapped to pertinent CCCP indicators. The mapping of resource allocation to pertinent CCCP indicators was coded by 1 rater. If the most precise indicator(s) that a grant mapped back to was unclear, 2 raters discussed mapping until consensus was achieved.
Funded projects could address more than 1 CCCP objective, either through separate activities directed at different objectives or through a single activity that cut across multiple objectives. An example of a crosscutting activity is advocacy for increasing the tobacco tax. This activity addressed objectives in both the Advocacy and Prevention chapters; thus, this type of grant contributed toward both the chapters. For DHEC mini-grants that addressed both prevention and early detection, the funding amount was uniformly allocated evenly between the 2. The total number of unduplicated grants was calculated, as was the total number of grants that addressed prevention and that addressed early detection. The process of mapping the allocation of grant projects back to the CCCP objectives took place in months 13 to 18 of the evaluation process.
Of the 64 objectives, 47% were measurable as written with the balance evenly divided between requiring minor and major changes (
The outcome evaluation was limited to the 33% (n = 21) of A1-rated objectives that were measurable as written with available outcome data. Of these, 38% showed little or no progress, 38% were partially met, and 24% were met (
During the 5-year evaluation period, a total of $1.73 million was awarded to grants for local cancer control projects: 29% via the SCCA grant mechanism and 71% via the DHEC mini-grant mechanism (
There were 56 SCCA grants totaling $500 642 distributed to partners, ranging from $500 to $30 000 each. Projects addressing objectives in Early Detection comprised 36% of the total funding, followed by Prevention (28%) and Advocacy and Policy (27%; this overlapped with other chapters), whereas Patient Care (17%), Survivor and Family (14%), and Research (6%) received substantially less. The funding was strongly aligned with CCCP objectives in areas such as tobacco cessation, legislative advocacy, colorectal cancer awareness, and cancer education.
A total of 41 SC DHEC grants totaling $1 230 323 were awarded to public health regions to carry out cancer prevention and control projects. Funds awarded ranged from $160 000 to $315 000 per year; most grants ranged from $20 000 to $35 000. These grants addressed solely prevention (22%), solely early detection (34%), or both (44%). These grants were strongly aligned with the CCCP in the areas of cancer education and screening, nutrition and physical activity education, tobacco control, and sun safety education and policy.
A novel, practical, and methodologically rigorous approach was used to implement a state CCCP outcome evaluation. The evaluation methods generated evidence to monitor progress, enhance planning efforts, and recommend improvements to the CCCP. In line with CDC's evaluation framework (
To lay the groundwork for the evaluation, CCCP objectives and strategies were organized and categorized (
Data were then assembled to evaluate the objectives (
The final evaluation steps were to synthesize the data and draw inferences (
Recommendations concerning the allocation of funded projects included ensuring (1) alignment of funding allocations with CCCP goals; (2) review of the relationship between grants funded in particular content areas and achievement of related objectives, with refinement of grant priorities as necessary; and (3) planning for detailed tracking of grants. For example, if CCCP priorities were not being addressed by funded projects, these underaddressed areas could be prioritized on future requests for applications. On the contrary, funding priorities could be downgraded if well-funded project areas showed little or no evidence of improvement in related CCCP objectives. The evaluation provided a critical comparison between the organization's priorities for statewide cancer control, its historical allocation of grant resources across these priority areas, and the impact of level of grant funding on these outcomes.
The lack of real-time information collected on funded projects obviated any summaries of grant deliverables or outcomes. An outcome evaluation of each project is essential to discriminate between effective and ineffective strategies. There are many reasons why strategies may or may not lead to objectives being met, such as objectives being set too high, mis-alignment between funded strategies and objectives, or ineffective interventions. For this reason, detailed, prospective monitoring of funded interventions is essential for tracking progress and priority setting. These projects represent a core investment in statewide cancer control, emphasizing the importance of accountability and adding further weight to the importance of rigorous monitoring and evaluation of each funded project.
The evaluation identified the lack of a Health Disparities section containing a unique set of objectives to address cancer-related health disparities. Because South Carolina has a high minority and rural population, the evaluation report highlighted a need to develop a robust freestanding section on health disparities. As a consequence of this evaluation recommendation, the 2010-2015 CCCP had an independent, more thorough focus on health disparities.
The proposed evaluation model provides a useful initial outcome evaluation step but is limited by the fact that the outcome evaluation focused only on a portion of CCCP. Knowing that 24% of the indicators with A1 ratings were met is a helpful beginning, but if the A1 indicators received the highest priority in the state's efforts, this could provide an overly optimistic assessment compared with the CCCP as a whole. Furthermore, the evaluation of the distribution of funding for community-based cancer control grants may not be relevant to all states and territories. Nevertheless, this portion of the evaluation provides an example of focusing on a local CCCP element of central importance. In South Carolina, describing the distribution of funds according to the CCCP's objectives provided information to assess whether funding allocations were aligned with organizational priorities. A limitation of the present evaluation was that the outcome evaluations of each of the funded projects was left unaddressed, highlighting a local data need to be more carefully tracked in future funded projects. Future CCCP efforts should consider the use of a comprehensive planning and evaluation framework (eg, reach, effectiveness, adoption, implementation, and maintenance [RE-AIM])
Despite these limitations, the present evaluation represents a novel model for an initial evaluation of a state's CCCP. The evaluation strategy provides a method to prioritize the most readily evaluable CCCP elements, allowing a streamlined approach to generate thorough outcome data for as much of the CCCP as possible while identifying CCCP elements in need of revision. This is practical because clarity was correlated with data availability, and hence ease of evaluation. This evaluation model may provide a practical and useful start to assessing the progress made toward CCCP objectives and to highlight future data collection and resource needs for more thorough and long-term evaluation strategies.
This research was funded by the South Carolina Cancer Alliance, the Hollings Cancer Center (P30 CA138313), the Medical University of South Carolina (UL1 RR029882), the Centers for Disease Control and Prevention (U48 DP001936), and the National Cancer Institute (U54 CA153461 [to J.R.H.] and K05 CA136975 [to J.R.H.]).
The authors declare no conflicts of interest.
Centers for Disease Control and Prevention Framework for Program Evaluation.
Process of Evaluation of CCCP Objectives.
Summary of Ratings for the South Carolina Comprehensive Cancer Control Plan Objectives (n = 64) According to the Clarity/Precision of the Written Objective (A, B, and C) and the Availability of Outcome Data (1, 2, and 3) to Evaluate It
| Clarity and Precision of Objective | ||||
|---|---|---|---|---|
| Availability of Outcome Data | A = Measurable as Written, n (%) | B = Measurable With Minor Changes, n (%) | C = Measurable With Major Changes, n (%) | Total, n (%) |
| 1 = Data currently available to evaluate | 21 (33) | 2 (3) | 0 (0) | 23 (36) |
| 2 = Secondary data collection required | 4 (6) | 7 (11) | 7 (11) | 18 (28) |
| 3 = Primary data collection required | 5 (8) | 8 (13) | 10 (16) | 23 (37) |
| Total, n (%) | 30 (47) | 17 (27) | 17 (27) | 64 (100) |
Status of Progress Toward Measurable Objectives and Strategies in the Cancer Plan
| Number of Measurable Objectives and Strategies | Status | |||
|---|---|---|---|---|
| Cancer Plan Chapter | Little or No Progress, n (%) | PartiallyMetor Some Progress, n (%) | Met, n (%) | |
| Prevention | 4 | 2 (50) | 2 (50) | 0 (0) |
| Early Detection | 8 | 6 (75) | 0 (0) | 2 (25) |
| Advocacy and Policy | 4 | 0 (0) | 3 (75) | 1 (25) |
| Patient Care | 2 | 0 (0) | 2 (100) | 0 (0) |
| Research | 3 | 0 (0) | 1 (33) | 2 (67) |
| Survivor and Family | 0 | 0 (0) | 0 (0) | 0 (0) |
| Total | 21 | 8 (38) | 8 (38) | 5 (24) |
Status: little or no progress, no evidence of measurable progress to meet the objective; partially met or some progress, evidence of progress that could result in achievement of the objective; Met, the objective was accomplished.
Summary of Grants Awarded Through State Health Department Funds to Target Cancer Prevention and Control Activities
| SCCA and SC DHEC Grant Awards (2005-2010) | ||||||
|---|---|---|---|---|---|---|
| SCCA Grants | SC DHEC Grants | Total Grants | ||||
| Cancer Plan Chapter | Number of Grants | Grant Amount | Number of Grants | Grant Amount | Number of Grants | Grant Amount |
| Prevention | 15 | $138 380 | 32 | $671 538 | 47 | $809 918 |
| Early Detection | 16 | $179 559 | 27 | $558 785 | 43 | $738 344 |
| Patient Care | 9 | $84 374 | 0 | $0 | 9 | $84 374 |
| Research | 2 | $28 389 | 0 | $0 | 2 | $28 389 |
| Survivor and Family | 14 | $69 940 | 0 | $0 | 14 | $69 940 |
| Total | 56 | $500 642 | 42 | $1 230 323 | 98 | $1 730 965 |
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Abbreviations: SCCA, South Carolina Cancer Alliance; SC DHEC, South Carolina Department of Health and Environmental Control.
SC DHEC grants often addressed both prevention and early detection. To account for this, in the “number of grants” column, the Prevention and Early Detection rows each contain any grant with a focus in these areas, but the “grant total” column includes the number of unduplicated grants awarded. For the SC DHEC “grant amount” column, grants addressing both Prevention and Early Detection were assumed to be equally allocated to both Prevention and Early Detection.
Grant funds were used to conduct evaluations that were objectives within the Research chapter of the cancer plan.
Advocacy and Policy overlapped with other chapters. To account for this, grants funded for advocacy work were allocated to the content area addressed. Total funds distributed to Advocacy and Health Policy are also included separately.