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Description:The HTC Population Profile is a set of twelve data items collected on patients with bleeding disorders or venous thromboembolism. These patients receive care at hemophilia treatment centers (HTCs) that are part of the United States Hemophilia Treatment Center Network (USHTCN). The USHTCN is a network of 132 HTCs located throughout the US and its territories. The HTCs practice a model of care delivery called comprehensive care. This care includes specialized prevention, diagnostic, and treatment programs. It also includes family-centered education, research, and support services for patients and families living with bleeding disorders. Congress provides support to these centers through the Maternal and Child Health Bureau and the Centers for Disease Control and Prevention (CDC). USHTCN centers that participate in the Community Counts project collect the data. Community Counts is sponsored by CDC to monitor the complications of bleeding disorders.
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