The Community Guide

- gsearch

Search Results

Narrow Results:

2022 1
2021 2
2020 1
2019 2
2017 1
2016 1
2014 2
2013 4
2012 2
2011 1

United States 2

Journal Article 16
Still Image 1

Poster 1

1 - 17 of 17 Results

Refine Results

Refine Results:

Potential of the Community Counts registry to characterize rare bleeding disorders

CITE Title : Potential of the Community Counts registry to characterize rare bleeding disorders Personal Author(s) : Gupta, Sweta;Acharya, Suchitra;Roberson, Christopher;Lail, Alice;Soucie, J. Michael;Shapiro, Amy; Published Date : 2019 November Source : Haemophilia. 25(6):1045-1050 URL : https://stacks.cdc.gov/view/cdc/87444 Gupta, Sweta et al. (2019). Potential of the Community Counts registry to characterize rare bleeding disorders. 25(6). Gupta, Sweta et al. "Potential of the Community Counts registry to characterize rare bleeding disorders" 25, no. 6 (2019) Gupta, Sweta et al. "Potential of the Community Counts registry to characterize rare bleeding disorders" vol. 25, no. 6, 2019 Export RIS Citation Information.

:

Gupta, Sweta ;

Acharya, Suchitra

2019 November | Haemophilia. 25(6):1045-1050

:

Introduction:Rare bleeding disorders (RBDs) comprise of heterogeneous coagulation factor deficiencies and platelet disorders that are underreported wo...
Females with FVIII and FIX deficiency have reduced joint range of motion

CITE Title : Females with FVIII and FIX deficiency have reduced joint range of motion Personal Author(s) : Sidonio, Robert F.;Mili, Fatima D.;Li, Tengguo;Miller, Connie H.;Hooper, William C.;DeBaun, Michael R.;Soucie, Michael; Corporate Authors(s) : The Hemophilia Treatment Centers Network Published Date : May 21 2014 Source : Am J Hematol. 2014; 89(8):831-836. URL : https://stacks.cdc.gov/view/cdc/31743 Sidonio, Robert F. et al. (2014). Females with FVIII and FIX deficiency have reduced joint range of motion. 89(8). Sidonio, Robert F. et al. "Females with FVIII and FIX deficiency have reduced joint range of motion" 89, no. 8 (2014) Sidonio, Robert F. et al. "Females with FVIII and FIX deficiency have reduced joint range of motion" vol. 89, no. 8, 2014 Export RIS Citation Information.

:

Sidonio, Robert F. ;

Mili, Fatima D.

May 21 2014 | Am J Hematol. 2014; 89(8):831-836.

:

Little is known about rates of joint bleeding among females with FVIII/FIX deficiency or hemophilia carriers. In a cross-sectional study, we tested th...
Identifying Information Needs Among Children and Teens Living With Hemophilia

CITE Title : Identifying Information Needs Among Children and Teens Living With Hemophilia Personal Author(s) : Simmons, Gretchen M.;Frick, Neil;Wang, Angelina;Miller, Mary Ellen;Fragueiro, Dianne; Published Date : Jun 28 2013 Source : Haemophilia. 20(1):1-8. URL : https://stacks.cdc.gov/view/cdc/31865 Simmons, Gretchen M. et al. (2013). Identifying Information Needs Among Children and Teens Living With Hemophilia. 20(1). Simmons, Gretchen M. et al. "Identifying Information Needs Among Children and Teens Living With Hemophilia" 20, no. 1 (2013) Simmons, Gretchen M. et al. "Identifying Information Needs Among Children and Teens Living With Hemophilia" vol. 20, no. 1, 2013 Export RIS Citation Information.

:

Simmons, Gretchen M. ;

Frick, Neil

Jun 28 2013 | Haemophilia. 20(1):1-8.

:

IntroductionTransitioning from one life stage to the next can be difficult, but for those living with a chronic condition, it can be even more challen...
Occurrence Rates of Inherited Bleeding Disorders Other Than Hemophilia and von Willebrand Disease Among People Receiving Care in Specialized Treatment Centers in the United States

CITE Title : Occurrence Rates of Inherited Bleeding Disorders Other Than Hemophilia and von Willebrand Disease Among People Receiving Care in Specialized Treatment Centers in the United States Personal Author(s) : Miller, Connie H.;Soucie, J. Michael;Byams, Vanessa R.;Payne, Amanda B.;Abe, Karon;Lewandowska, Magdalena;Shapiro, Amy D.; Published Date : 5 2022;5-2022; Source : Haemophilia. 28(3):e75-e78 URL : https://stacks.cdc.gov/view/cdc/120920 Miller, Connie H. et al. (2022). Occurrence Rates of Inherited Bleeding Disorders Other Than Hemophilia and von Willebrand Disease Among People Receiving Care in Specialized Treatment Centers in the United States. 28(3). Miller, Connie H. et al. "Occurrence Rates of Inherited Bleeding Disorders Other Than Hemophilia and von Willebrand Disease Among People Receiving Care in Specialized Treatment Centers in the United States" 28, no. 3 (2022) Miller, Connie H. et al. "Occurrence Rates of Inherited Bleeding Disorders Other Than Hemophilia and von Willebrand Disease Among People Receiving Care in Specialized Treatment Centers in the United States" vol. 28, no. 3, 2022 Export RIS Citation Information.

:

Miller, Connie H. ;

Soucie, J. Michael

5 2022 | Haemophilia. 28(3):e75-e78

No Description
Prophylaxis use among males with haemophilia B in the United States

CITE Title : Prophylaxis use among males with haemophilia B in the United States Personal Author(s) : Ullman, M.;Zhang, Q. C.;Grosse, S. D.;Recht, M.;Soucie, J. M.; Published Date : 11 2017;11-2017; Source : Haemophilia. 23(6):910-917 URL : https://stacks.cdc.gov/view/cdc/50516 Ullman, M. et al. (2017). Prophylaxis use among males with haemophilia B in the United States. 23(6). Ullman, M. et al. "Prophylaxis use among males with haemophilia B in the United States" 23, no. 6 (2017) Ullman, M. et al. "Prophylaxis use among males with haemophilia B in the United States" vol. 23, no. 6, 2017 Export RIS Citation Information.

:

Ullman, M. ;

Zhang, Q. C.

11 2017 | Haemophilia. 23(6):910-917

:

IntroductionProphylaxis is considered the optimal treatment for persons with moderate to severe haemophilia (factor activity between 1–5% of normal ...
Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008

CITE Title : Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008 Personal Author(s) : GUH, S.;GROSSE, S. D.;McALISTER, S.;KESSLER, C. M.;SOUCIE, J. M.; Published Date : Dec 12 2011 Source : Haemophilia. 18(2):268-275. URL : https://stacks.cdc.gov/view/cdc/33856 GUH, S. et al. (2011). Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008. 18(2). GUH, S. et al. "Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008" 18, no. 2 (2011) GUH, S. et al. "Healthcare expenditures for males with haemophilia and employer-sponsored insurance in the United States, 2008" vol. 18, no. 2, 2011 Export RIS Citation Information.

:

GUH, S. ;

GROSSE, S. D.

Dec 12 2011 | Haemophilia. 18(2):268-275.

:

Although hemophilia has a potentially high economic impact, published estimates of health care costs for Americans with hemophilia are sparse and non-...
A Study of Prospective Surveillance for Inhibitors among Persons with Haemophilia in the United States

CITE Title : A Study of Prospective Surveillance for Inhibitors among Persons with Haemophilia in the United States Personal Author(s) : Soucie, J. Michael;Miller, Connie H.;Kelly, Fiona M.;Payne, Amanda B.;Creary, Melissa;Bockenstedt, Paula L.;Kempton, Christine L.;Manco-Johnson, Marilyn J.;Neff, Anne T.; Corporate Authors(s) : Haemophilia Inhibitor Research Study Investigators Published Date : Nov 22 2013 Source : Haemophilia. 20(2):230-237. URL : https://stacks.cdc.gov/view/cdc/32548 Soucie, J. Michael et al. (2013). A Study of Prospective Surveillance for Inhibitors among Persons with Haemophilia in the United States. 20(2). Soucie, J. Michael et al. "A Study of Prospective Surveillance for Inhibitors among Persons with Haemophilia in the United States" 20, no. 2 (2013) Soucie, J. Michael et al. "A Study of Prospective Surveillance for Inhibitors among Persons with Haemophilia in the United States" vol. 20, no. 2, 2013 Export RIS Citation Information.

:

Soucie, J. Michael ;

Miller, Connie H.

Nov 22 2013 | Haemophilia. 20(2):230-237.

:

IntroductionInhibitors are a rare but serious complication of treatment of patients with haemophilia. Phase III clinical trials enroll too few patient...
Genetic causes of haemophilia in women and girls

CITE Title : Genetic causes of haemophilia in women and girls Personal Author(s) : Miller, Connie H.;Bean, Christopher J.; Published Date : 3 2021;3-2021; Source : Haemophilia. 27(2):e164-e179 URL : https://stacks.cdc.gov/view/cdc/106467 Miller, Connie H. and Bean, Christopher J. (2021). Genetic causes of haemophilia in women and girls. 27(2). Miller, Connie H. and Bean, Christopher J. "Genetic causes of haemophilia in women and girls" 27, no. 2 (2021) Miller, Connie H. and Bean, Christopher J. "Genetic causes of haemophilia in women and girls" vol. 27, no. 2, 2021 Export RIS Citation Information.

:

Miller, Connie H.

;

Bean, Christopher J.

3 2021 | Haemophilia. 27(2):e164-e179

:

Women and girls reported as "haemophilic females" may have complex genetic causes for their haemophilia phenotype. In addition, women and girls may ha...
Mathematical model of thrombin generation and bleeding phenotype in Amish carriers of Factor IX:C deficiency vs. controls

CITE Title : Mathematical model of thrombin generation and bleeding phenotype in Amish carriers of Factor IX:C deficiency vs. controls Personal Author(s) : Gupta, S.;Bravo, M.C.;Heiman, M.;Nakar, C.;Brummel-Ziedins, K.;Miller, C.H.;Shapiro, A.; Published Date : August 08 2019 Source : Thromb Res. 182:43-50 URL : https://stacks.cdc.gov/view/cdc/85866 Gupta, S. et al. (2019). Mathematical model of thrombin generation and bleeding phenotype in Amish carriers of Factor IX:C deficiency vs. controls. 182 Gupta, S. et al. "Mathematical model of thrombin generation and bleeding phenotype in Amish carriers of Factor IX:C deficiency vs. controls" 182 (2019) Gupta, S. et al. "Mathematical model of thrombin generation and bleeding phenotype in Amish carriers of Factor IX:C deficiency vs. controls" vol. 182, 2019 Export RIS Citation Information.

:

Gupta, S. ;

Bravo, M.C.

August 08 2019 | Thromb Res. 182:43-50

:

IntroductionFactor IX:C (FIX:C) levels vary in hemophilia B carriers even in pedigrees with a unifying genetic defect. Analyzing the balance between p...
Prevalent Inhibitors in Hemophilia B Subjects Enrolled in the Universal Data Collection Database

CITE Title : Prevalent Inhibitors in Hemophilia B Subjects Enrolled in the Universal Data Collection Database Personal Author(s) : Puetz, John;Soucie, J. Michael;Kempton, Christine L.;Monahan, Paul E.; Corporate Authors(s) : Hemophilia Treatment Center Network (HTCN) Investigators Published Date : Jul 16 2013 Source : Haemophilia. 20(1):25-31 URL : https://stacks.cdc.gov/view/cdc/32554 Puetz, John et al. (2013). Prevalent Inhibitors in Hemophilia B Subjects Enrolled in the Universal Data Collection Database. 20(1). Puetz, John et al. "Prevalent Inhibitors in Hemophilia B Subjects Enrolled in the Universal Data Collection Database" 20, no. 1 (2013) Puetz, John et al. "Prevalent Inhibitors in Hemophilia B Subjects Enrolled in the Universal Data Collection Database" vol. 20, no. 1, 2013 Export RIS Citation Information.

:

Puetz, John ;

Soucie, J. Michael

Jul 16 2013 | Haemophilia. 20(1):25-31

:

BackgroundSeveral risk factors for inhibitors have recently been described for hemophilia A. It has been assumed that similar risk factors are also re...
Women and Girls with Hemophilia Receiving Care at Specialized Hemophilia Treatment Centers in the United States

CITE Title : Women and Girls with Hemophilia Receiving Care at Specialized Hemophilia Treatment Centers in the United States Personal Author(s) : Miller, Connie H.;Soucie, J. Michael;Byams, Vanessa R.;Payne, Amanda B.;Sidonio, Robert F.;Buckner, Tyler W.;Bean, Christopher J.; Published Date : 11 2021 Source : Haemophilia. 27(6):1037-1044 URL : https://stacks.cdc.gov/view/cdc/112455 Miller, Connie H. et al. (2021). Women and Girls with Hemophilia Receiving Care at Specialized Hemophilia Treatment Centers in the United States. 27(6). Miller, Connie H. et al. "Women and Girls with Hemophilia Receiving Care at Specialized Hemophilia Treatment Centers in the United States" 27, no. 6 (2021) Miller, Connie H. et al. "Women and Girls with Hemophilia Receiving Care at Specialized Hemophilia Treatment Centers in the United States" vol. 27, no. 6, 2021 Export RIS Citation Information.

:

Miller, Connie H. ;

Soucie, J. Michael

11 2021 | Haemophilia. 27(6):1037-1044

:

Introduction:Females may have hemophilia with the same factor VIII (FVIII) or factor IX (FIX) levels as affected males. Characterization of females wi...
Validation of Nijmegen-Bethesda Assay Modifications to Allow Inhibitor Measurement during Replacement Therapy and Facilitate Inhibitor Surveillance

CITE Title : Validation of Nijmegen-Bethesda Assay Modifications to Allow Inhibitor Measurement during Replacement Therapy and Facilitate Inhibitor Surveillance Personal Author(s) : Miller, C. H.;Platt, S. J.;Rice, A. S.;Kelly, F.;Soucie, J. M.; Corporate Authors(s) : Hemophilia Inhibitor Research Study Investigators Published Date : 6 2012;6-2012; Source : J Thromb Haemost. 10(6):1055-1061 URL : https://stacks.cdc.gov/view/cdc/33790 Miller, C. H. et al. (2012). Validation of Nijmegen-Bethesda Assay Modifications to Allow Inhibitor Measurement during Replacement Therapy and Facilitate Inhibitor Surveillance. 10(6). Miller, C. H. et al. "Validation of Nijmegen-Bethesda Assay Modifications to Allow Inhibitor Measurement during Replacement Therapy and Facilitate Inhibitor Surveillance" 10, no. 6 (2012) Miller, C. H. et al. "Validation of Nijmegen-Bethesda Assay Modifications to Allow Inhibitor Measurement during Replacement Therapy and Facilitate Inhibitor Surveillance" vol. 10, no. 6, 2012 Export RIS Citation Information.

:

Miller, C. H. ;

Platt, S. J.

6 2012 | J Thromb Haemost. 10(6):1055-1061

:

BackgroundAs part of a pilot U.S. inhibitor surveillance project initiated at the Centers for Disease Control and Prevention (CDC) in 2006, centralize...
Comparison of Clot-based, Chromogenic, and Fluorescence Assays for Measurement of Factor VIII Inhibitors in the U.S. Hemophilia Inhibitor Research Study

CITE Title : Comparison of Clot-based, Chromogenic, and Fluorescence Assays for Measurement of Factor VIII Inhibitors in the U.S. Hemophilia Inhibitor Research Study Personal Author(s) : Miller, Connie H.;Rice, Anne S.;Boylan, Brian;Shapiro, Amy D.;Lentz, Steven R.;Wicklund, Brian M.;Kelly, Fiona M.;Soucie, J. Michael; Corporate Authors(s) : Hemophilia Inhibitor Research Study Investigators Published Date : 7 2013;7-2013; Source : J Thromb Haemost. 11(7):1300-1309 URL : https://stacks.cdc.gov/view/cdc/31742 Miller, Connie H. et al. (2013). Comparison of Clot-based, Chromogenic, and Fluorescence Assays for Measurement of Factor VIII Inhibitors in the U.S. Hemophilia Inhibitor Research Study. 11(7). Miller, Connie H. et al. "Comparison of Clot-based, Chromogenic, and Fluorescence Assays for Measurement of Factor VIII Inhibitors in the U.S. Hemophilia Inhibitor Research Study" 11, no. 7 (2013) Miller, Connie H. et al. "Comparison of Clot-based, Chromogenic, and Fluorescence Assays for Measurement of Factor VIII Inhibitors in the U.S. Hemophilia Inhibitor Research Study" vol. 11, no. 7, 2013 Export RIS Citation Information.

:

Miller, Connie H. ;

Rice, Anne S.

7 2013 | J Thromb Haemost. 11(7):1300-1309

:

BackgroundDetection and validation of inhibitors (antibodies) to hemophilia treatment products are important for clinical care, evaluation of product ...
Mutation analysis of a cohort of US patients with hemophilia B

CITE Title : Mutation analysis of a cohort of US patients with hemophilia B Personal Author(s) : Li, Tengguo;Miller, Connie H.;Driggers, Jennifer;Payne, Amanda B.;Ellingsen, Dorothy;Hooper, W. Craig; Published Date : 4 2014;4-2014; Source : Am J Hematol. 89(4):375-379 URL : https://stacks.cdc.gov/view/cdc/32073 Li, Tengguo et al. (2014). Mutation analysis of a cohort of US patients with hemophilia B. 89(4). Li, Tengguo et al. "Mutation analysis of a cohort of US patients with hemophilia B" 89, no. 4 (2014) Li, Tengguo et al. "Mutation analysis of a cohort of US patients with hemophilia B" vol. 89, no. 4, 2014 Export RIS Citation Information.

:

Li, Tengguo ;

Miller, Connie H.

4 2014 | Am J Hematol. 89(4):375-379

:

Hemophilia B (HB) is a disorder resulting from genetic mutations in the Factor 9 gene (F9). Genotyping of HB patients is important for genetic counsel...
Prevalence of clinical hip abnormalities in haemophilia A and B: an analysis of the UDC database

CITE Title : Prevalence of clinical hip abnormalities in haemophilia A and B: an analysis of the UDC database Personal Author(s) : KELLY, D.;ZHANG, Q. C.;SOUCIE, J. M.;MANCO-JOHNSON, M.;DIMICHELE, D.; Published Date : Dec 17 2012 Source : Haemophilia. 2012; 19(3):426-431. URL : https://stacks.cdc.gov/view/cdc/33777 KELLY, D. et al. (2012). Prevalence of clinical hip abnormalities in haemophilia A and B: an analysis of the UDC database. 19(3). KELLY, D. et al. "Prevalence of clinical hip abnormalities in haemophilia A and B: an analysis of the UDC database" 19, no. 3 (2012) KELLY, D. et al. "Prevalence of clinical hip abnormalities in haemophilia A and B: an analysis of the UDC database" vol. 19, no. 3, 2012 Export RIS Citation Information.

:

KELLY, D. ;

ZHANG, Q. C.

Dec 17 2012 | Haemophilia. 2012; 19(3):426-431.

:

Clinical hip abnormalities, secondary to recurrent joint and/or muscle bleeding in persons with haemophilia, have not been well characterized and have...
Survey of the Anti-Factor IX Immunoglobulin Profiles in Patients With Hemophilia B Using a Fluorescence-Based Immunoassay

CITE Title : Survey of the Anti-Factor IX Immunoglobulin Profiles in Patients With Hemophilia B Using a Fluorescence-Based Immunoassay Personal Author(s) : Boylan, Brian;Rice, Anne S.;Neff, Anne T.;Manco-Johnson, Marilyn J.;Kempton, Christine L.;Miller, Connie H.; Published Date : 10 2016;10-2016; Source : J Thromb Haemost. 14(10):1931-1940 URL : https://stacks.cdc.gov/view/cdc/42303 Boylan, Brian et al. (2016). Survey of the Anti-Factor IX Immunoglobulin Profiles in Patients With Hemophilia B Using a Fluorescence-Based Immunoassay. 14(10). Boylan, Brian et al. "Survey of the Anti-Factor IX Immunoglobulin Profiles in Patients With Hemophilia B Using a Fluorescence-Based Immunoassay" 14, no. 10 (2016) Boylan, Brian et al. "Survey of the Anti-Factor IX Immunoglobulin Profiles in Patients With Hemophilia B Using a Fluorescence-Based Immunoassay" vol. 14, no. 10, 2016 Export RIS Citation Information.

:

Boylan, Brian ;

Rice, Anne S.

10 2016 | J Thromb Haemost. 14(10):1931-1940

:

BackgroundHemophilia B (HB) is an inherited bleeding disorder caused by the absence or dysfunction of coagulation factor IX (FIX). A subset of patient...
World Hemophia Day : April 17

CITE Title : World Hemophia Day : April 17 Corporate Authors(s) : Centers for Disease Control and Prevention (U.S.) Published Date : April 2, 2020 Pages in Document : 1 poster Source : World Hemophia Day URL : https://stacks.cdc.gov/view/cdc/86678 Centers for Disease Control and Prevention (U.S.) (2020). World Hemophia Day : April 17. Centers for Disease Control and Prevention (U.S.) "World Hemophia Day : April 17" (2020) Centers for Disease Control and Prevention (U.S.) "World Hemophia Day : April 17" , 2020 Export RIS Citation Information.

:

Centers for Disease Control and Prevention (U.S.)

April 2, 2020 | World Hemophia Day

:

Hemophilia is an inherited bleeding disorder, which means it can run in families. Blood does not clot properly in people with hemophilia. Blood contai...