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Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources

CITE Title : Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources Personal Author(s) : Frishman, Natalia;Conway, Kristin Caspers;Andrews, Jennifer;Oleson, Jacob;Mathews, Katherine;Ciafaloni, Emma;Oleszek, Joyce;Lamb, Molly;Matthews, Dennis;Paramsothy, Pangaja;McKirgan, Lowell;Romitti, Paul; Published Date : Feb 10 2017 Source : Health Qual Life Outcomes. 15. URL : https://stacks.cdc.gov/view/cdc/44401 Frishman, Natalia et al. (2017). Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources. 15 Frishman, Natalia et al. "Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources" 15 (2017) Frishman, Natalia et al. "Perceived quality of life among caregivers of children with a childhood-onset dystrophinopathy: a double ABCX model of caregiver stressors and perceived resources" vol. 15, 2017 Export RIS Citation Information.

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Frishman, Natalia ;

Conway, Kristin Caspers

Feb 10 2017 | Health Qual Life Outcomes. 15.

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BackgroundDuchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are recessive X-linked disorders characterized by ...
Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies

CITE Title : Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies Personal Author(s) : Soelaeman, Rieza H.;Smith, Michael G.;Sahay, Kashika;Tilford, J. Mick;Goodenough, Dana;Paramsothy, Pangaja;Ouyang, Lijing;Oleszek, Joyce;Grosse, Scott D.; Published Date : 12 2021 Source : Muscle Nerve. 64(6):717-725 URL : https://stacks.cdc.gov/view/cdc/111864 Soelaeman, Rieza H. et al. (2021). Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies. 64(6). Soelaeman, Rieza H. et al. "Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies" 64, no. 6 (2021) Soelaeman, Rieza H. et al. "Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies" vol. 64, no. 6, 2021 Export RIS Citation Information.

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Soelaeman, Rieza H.

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Smith, Michael G.

12 2021 | Muscle Nerve. 64(6):717-725

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Introduction/Aims:Duchenne and Becker muscular dystrophies (DBMD) are X-linked neuromuscular disorders characterized by progressive muscle weakness, l...
Genitourinary health in a population-based cohort of males with Duchenne and Becker muscular dystrophies

CITE Title : Genitourinary health in a population-based cohort of males with Duchenne and Becker muscular dystrophies Personal Author(s) : Zhu, Yong;Romitti, Paul A.;Conway, Kristin M. Caspers;Kim, Sunkyung;Zhang, Ying;Yang, Michele;Mathews, Katherine D.; Corporate Authors(s) : MD STARnet Published Date : Jun 03 2015 Source : Muscle Nerve. 52(1):22-27. URL : https://stacks.cdc.gov/view/cdc/30748 Zhu, Yong et al. (2015). Genitourinary health in a population-based cohort of males with Duchenne and Becker muscular dystrophies. 52(1). Zhu, Yong et al. "Genitourinary health in a population-based cohort of males with Duchenne and Becker muscular dystrophies" 52, no. 1 (2015) Zhu, Yong et al. "Genitourinary health in a population-based cohort of males with Duchenne and Becker muscular dystrophies" vol. 52, no. 1, 2015 Export RIS Citation Information.

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Zhu, Yong ;

Romitti, Paul A.

Jun 03 2015 | Muscle Nerve. 52(1):22-27.

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IntroductionGenitourinary (GU) health among patients with Duchenne and Becker muscular dystrophies (DBMD) has not been explored using population-based...
Complementary and Alternative Medicine for Duchenne and Becker Muscular Dystrophies: Characteristics of Users and Caregivers

CITE Title : Complementary and Alternative Medicine for Duchenne and Becker Muscular Dystrophies: Characteristics of Users and Caregivers Personal Author(s) : Zhu, Yong;Romitti, Paul A.;Conway, Kristin M.;Andrews, Jennifer;Liu, Ke;Meaney, F. John;Street, Natalie;Puzhankara, Soman;Druschel, Charlotte M.;Matthews, Dennis J.; Published Date : Feb 15 2014 Source : Pediatr Neurol. 2014; 51(1):71-77. URL : https://stacks.cdc.gov/view/cdc/31619 Zhu, Yong et al. (2014). Complementary and Alternative Medicine for Duchenne and Becker Muscular Dystrophies: Characteristics of Users and Caregivers. 51(1). Zhu, Yong et al. "Complementary and Alternative Medicine for Duchenne and Becker Muscular Dystrophies: Characteristics of Users and Caregivers" 51, no. 1 (2014) Zhu, Yong et al. "Complementary and Alternative Medicine for Duchenne and Becker Muscular Dystrophies: Characteristics of Users and Caregivers" vol. 51, no. 1, 2014 Export RIS Citation Information.

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Zhu, Yong ;

Romitti, Paul A.

Feb 15 2014 | Pediatr Neurol. 2014; 51(1):71-77.

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BACKGROUNDComplementary and alternative medicine is frequently used in the management of chronic pediatric diseases, but little is known about its use...
Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies

CITE Title : Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies Personal Author(s) : Conway, Kristin M;Ciafaloni, Emma;Matthews, Dennis;Westfield, Chris;James, Kathy;Paramsothy, Pangaja;Romitti, Paul A; Published Date : 7 2018;7-2018; Source : Disabil Rehabil. 40(15):1773-1780 URL : https://stacks.cdc.gov/view/cdc/49120 Conway, Kristin M et al. (2018). Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies. 40(15). Conway, Kristin M et al. "Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies" 40, no. 15 (2018) Conway, Kristin M et al. "Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies" vol. 40, no. 15, 2018 Export RIS Citation Information.

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Conway, Kristin M ;

Ciafaloni, Emma

7 2018 | Disabil Rehabil. 40(15):1773-1780

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PurposeDuchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are X-linked recessive diseases that affect dystrophi...