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Epilepsy misconceptions and stigma reduction: Current status in Western Countries

CITE Title : Epilepsy misconceptions and stigma reduction: Current status in Western Countries Personal Author(s) : Herrmann, Lynn K.;Welter, Elisabeth;Berg, Anne T.;Perzynski, Adam T.;Doren, James Van;Sajatovic, Martha; Published Date : 7 2016;7-2016; Source : Epilepsy Behav. 60:165-173 URL : https://stacks.cdc.gov/view/cdc/57169 Herrmann, Lynn K. et al. (2016). Epilepsy misconceptions and stigma reduction: Current status in Western Countries. 60 Herrmann, Lynn K. et al. "Epilepsy misconceptions and stigma reduction: Current status in Western Countries" 60 (2016) Herrmann, Lynn K. et al. "Epilepsy misconceptions and stigma reduction: Current status in Western Countries" vol. 60, 2016 Export RIS Citation Information.

:

Herrmann, Lynn K. ;

Welter, Elisabeth

7 2016 | Epilepsy Behav. 60:165-173

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Objective:This systematized literature review identified reports describing epilepsy misconceptions in the developed Western countries and research in...
Reduction of the Adult Epilepsy Self-Management Measure Instrument (AESMMI)

CITE Title : Reduction of the Adult Epilepsy Self-Management Measure Instrument (AESMMI) Personal Author(s) : Escoffery, Cam;Haardoerfer, Regine;Bamps, Yvan;McGee, Robin;Geiger, Demetrius;Quarells, Rakale C.;Thompson, Nancy J.;Patel, Archna;Anderson, Molly;Curt LaFrance, W.; Published Date : 6 2022;6-2022; Source : Epilepsy Behav. 131(Pt A):108692 URL : https://stacks.cdc.gov/view/cdc/150382 Escoffery, Cam et al. (2022). Reduction of the Adult Epilepsy Self-Management Measure Instrument (AESMMI). 131 Escoffery, Cam et al. "Reduction of the Adult Epilepsy Self-Management Measure Instrument (AESMMI)" 131 (2022) Escoffery, Cam et al. "Reduction of the Adult Epilepsy Self-Management Measure Instrument (AESMMI)" vol. 131, 2022 Export RIS Citation Information.

:

Escoffery, Cam ;

Haardoerfer, Regine

6 2022 | Epilepsy Behav. 131(Pt A):108692

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Managing one's own symptoms, medications, treatments, lifestyle, and psychological and social aspects of chronic disease is known as self-management. ...
Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013✩

CITE Title : Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013✩ Personal Author(s) : Thurman, David J.;Kobau, Rosemarie;Luo, Yao-Hua;Helmers, Sandra L.;Zack, Matthew M.; Published Date : 2 2016;2-2016; Source : Epilepsy Behav. 55:184-188 URL : https://stacks.cdc.gov/view/cdc/44306 Thurman, David J. et al. (2016). Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013✩. 55 Thurman, David J. et al. "Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013✩" 55 (2016) Thurman, David J. et al. "Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013✩" vol. 55, 2016 Export RIS Citation Information.

:

Thurman, David J. ;

Kobau, Rosemarie

2 2016 | Epilepsy Behav. 55:184-188

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IntroductionCommunity-based and other epidemiologic studies within the United States have identified substantial disparities in health care among adul...
Serious psychological distress among adults with active epilepsy in all racial/ethnic groups and among adults with inactive epilepsy in non-Hispanic whites is significantly higher than among adults without epilepsy–U.S. National Health Interview Survey, 2010, 2013, 2015, and 2017

CITE Title : Serious psychological distress among adults with active epilepsy in all racial/ethnic groups and among adults with inactive epilepsy in non-Hispanic whites is significantly higher than among adults without epilepsy–U.S. National Health Interview Survey, 2010, 2013, 2015, and 2017 Personal Author(s) : Kobau, Rosemarie;Sapkota, Sanjeeb;Zack, Matthew M.; Published Date : 6 2019 Source : Epilepsy Behav. 95:192-194 URL : https://stacks.cdc.gov/view/cdc/110323 Kobau, Rosemarie et al. (2019). Serious psychological distress among adults with active epilepsy in all racial/ethnic groups and among adults with inactive epilepsy in non-Hispanic whites is significantly higher than among adults without epilepsy–U.S. National Health Interview Survey, 2010, 2013, 2015, and 2017. 95 Kobau, Rosemarie and Sapkota, Sanjeeb and Zack, Matthew M. "Serious psychological distress among adults with active epilepsy in all racial/ethnic groups and among adults with inactive epilepsy in non-Hispanic whites is significantly higher than among adults without epilepsy–U.S. National Health Interview Survey, 2010, 2013, 2015, and 2017" 95 (2019) Kobau, Rosemarie et al. "Serious psychological distress among adults with active epilepsy in all racial/ethnic groups and among adults with inactive epilepsy in non-Hispanic whites is significantly higher than among adults without epilepsy–U.S. National Health Interview Survey, 2010, 2013, 2015, and 2017" vol. 95, 2019 Export RIS Citation Information.

:

Kobau, Rosemarie ;

Sapkota, Sanjeeb

6 2019 | Epilepsy Behav. 95:192-194

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Serious psychological distress (SPD) includes mental health problems severe enough to cause moderate-to-serious impairment in daily activities and to ...
The Managing Epilepsy Well (MEW) Network: Advancing Epilepsy Self-Management

CITE Title : The Managing Epilepsy Well (MEW) Network: Advancing Epilepsy Self-Management Personal Author(s) : Sajatovic, Martha;Jobst, Barbara C.;Shegog, Ross;Bamps, Yvan A.;Begley, Charles E.;Fraser, Robert T.;Johnson, Erica K.;Pandey, Dilip K.;Quarells, Rakale C.;Scal, Peter;Spruill, Tanya M.;Thompson, Nancy J.;Kobau, Rosemarie; Published Date : 3 2017;3-2017; Source : Am J Prev Med. 52(3 Suppl 3):S241-S245 URL : https://stacks.cdc.gov/view/cdc/61034 Sajatovic, Martha et al. (2017). The Managing Epilepsy Well (MEW) Network: Advancing Epilepsy Self-Management. 52 Sajatovic, Martha et al. "The Managing Epilepsy Well (MEW) Network: Advancing Epilepsy Self-Management" 52 (2017) Sajatovic, Martha et al. "The Managing Epilepsy Well (MEW) Network: Advancing Epilepsy Self-Management" vol. 52, 2017 Export RIS Citation Information.

:

Sajatovic, Martha ;

Jobst, Barbara C.

3 2017 | Am J Prev Med. 52(3 Suppl 3):S241-S245

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Epilepsy, a complex spectrum of disorders, affects about 2.9 million people in the U.S. Similar to other chronic disorders, people with epilepsy face ...
Inconsistent Medicaid Coverage is Associated with Negative Health Events for People with Epilepsy

CITE Title : Inconsistent Medicaid Coverage is Associated with Negative Health Events for People with Epilepsy Personal Author(s) : Bensken, Wyatt P.;Ciesielski, Timothy H.;Williams, Scott M.;Stange, Kurt C.;Sajatovic, Martha;Koroukian, Siran M.; Published Date : 2022;2022; Source : J Health Care Poor Underserved. 33(2):1036-1053 URL : https://stacks.cdc.gov/view/cdc/120658 Bensken, Wyatt P. et al. (2022). Inconsistent Medicaid Coverage is Associated with Negative Health Events for People with Epilepsy. 33(2). Bensken, Wyatt P. et al. "Inconsistent Medicaid Coverage is Associated with Negative Health Events for People with Epilepsy" 33, no. 2 (2022) Bensken, Wyatt P. et al. "Inconsistent Medicaid Coverage is Associated with Negative Health Events for People with Epilepsy" vol. 33, no. 2, 2022 Export RIS Citation Information.

:

Bensken, Wyatt P. ;

Ciesielski, Timothy H.

2022 | J Health Care Poor Underserved. 33(2):1036-1053

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Objective.Examine the association between gaps in Medicaid coverage and negative health events (NHEs) for people with epilepsy (PWE).Methods.Using fiv...
Depressive Symptom Severity in Individuals with Epilepsy and Recent Health Complications

CITE Title : Depressive Symptom Severity in Individuals with Epilepsy and Recent Health Complications Personal Author(s) : Kumar, Neha;Lhatoo, Rigzin;Liu, Hongyan;Colon-Zimmermann, Kari;Tatsuoka, Curtis;Chen, Peijun;Kahriman, Mustafa;Sajatovic, Martha; Published Date : 4 2019 Source : J Nerv Ment Dis. 207(4):284-290 URL : https://stacks.cdc.gov/view/cdc/78644 Kumar, Neha et al. (2019). Depressive Symptom Severity in Individuals with Epilepsy and Recent Health Complications. 207(4). Kumar, Neha et al. "Depressive Symptom Severity in Individuals with Epilepsy and Recent Health Complications" 207, no. 4 (2019) Kumar, Neha et al. "Depressive Symptom Severity in Individuals with Epilepsy and Recent Health Complications" vol. 207, no. 4, 2019 Export RIS Citation Information.

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Kumar, Neha ;

Lhatoo, Rigzin

4 2019 | J Nerv Ment Dis. 207(4):284-290

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Identifying relationships between depression severity and clinical factors may help with appropriate recognition and management of neuropsychiatric co...
Targeted Self-Management for Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity

CITE Title : Targeted Self-Management for Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity Personal Author(s) : SAJATOVIC, Martha;TATSUOKA, Curtis;WELTER, Elisabeth;PERZYNSKI, Adam T.;COLON- ZIMMERMANN, Kari;VAN DOREN, James R.;BUKACH, Ashley;LAWLESS, Mary Ellen;RYAN, Eleanor R.;STURNIOLO, Katherine;LHATOO, Samden; Published Date : 11 2016;11-2016; Source : Epilepsy Behav. 64(Pt A):152-159 URL : https://stacks.cdc.gov/view/cdc/60140 SAJATOVIC, Martha et al. (2016). Targeted Self-Management for Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity. 64 SAJATOVIC, Martha et al. "Targeted Self-Management for Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity" 64 (2016) SAJATOVIC, Martha et al. "Targeted Self-Management for Epilepsy and Mental Illness for individuals with epilepsy and psychiatric comorbidity" vol. 64, 2016 Export RIS Citation Information.

:

SAJATOVIC, Martha ;

TATSUOKA, Curtis

11 2016 | Epilepsy Behav. 64(Pt A):152-159

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Objectives:Serious mental illness is disproportionately common in people with epilepsy and contributes to complications and mortality. Few care approa...
Tracking Psychosocial Health in Adults with Epilepsy—Estimates from the 2010 National Health Interview Survey

CITE Title : Tracking Psychosocial Health in Adults with Epilepsy—Estimates from the 2010 National Health Interview Survey Personal Author(s) : Kobau, R;Cui, W;Kadima, N;Zack, MM;Sajatovic, M;Kaiboriboon, K;Jobst, B; Published Date : 12 2014;12-2014; Source : Epilepsy Behav. 41:66-73 URL : https://stacks.cdc.gov/view/cdc/34196 Kobau, R et al. (2014). Tracking Psychosocial Health in Adults with Epilepsy—Estimates from the 2010 National Health Interview Survey. 41 Kobau, R et al. "Tracking Psychosocial Health in Adults with Epilepsy—Estimates from the 2010 National Health Interview Survey" 41 (2014) Kobau, R et al. "Tracking Psychosocial Health in Adults with Epilepsy—Estimates from the 2010 National Health Interview Survey" vol. 41, 2014 Export RIS Citation Information.

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Kobau, R ;

Cui, W

12 2014 | Epilepsy Behav. 41:66-73

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ObjectiveThis study provides population-based estimates of psychosocial health among U.S. adults with epilepsy from the 2010 National Health Interview...
Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history

CITE Title : Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history Personal Author(s) : Zack, Matthew;Luncheon, Cecily; Published Date : 9 2018 Source : Epilepsy Behav. 86:208-210 URL : https://stacks.cdc.gov/view/cdc/58473 Zack, Matthew and Luncheon, Cecily (2018). Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history. 86 Zack, Matthew and Luncheon, Cecily "Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history" 86 (2018) Zack, Matthew and Luncheon, Cecily "Adults with an epilepsy history, notably those 45–64 years old or at the lowest income levels, more often report heart disease than adults without an epilepsy history" vol. 86, 2018 Export RIS Citation Information.

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Zack, Matthew ;

Luncheon, Cecily

9 2018 | Epilepsy Behav. 86:208-210

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From 95,196 sample adults in the combined 2010, 2013, and 2015 U.S. National Health Interview Survey, we estimated the association between histories o...
National Association of Medical Examiners position paper: Recommendations for the investigation and certification of deaths in people with epilepsy

CITE Title : National Association of Medical Examiners position paper: Recommendations for the investigation and certification of deaths in people with epilepsy Personal Author(s) : Middleton, Owen;Atherton, Daniel;Bundock, Elizabeth;Donner, Elizabeth;Friedman, Daniel;Hesdorffer, Dale;Jarrell, Heather;McCrillis, Aileen;Mena, Othon J.;Morey, Mitchel;Thurman, David;Tian, Niu;Tomson, Torbjörn;Tseng, Zian;White, Steven;Wright, Cyndi;Devinsky, Orrin; Published Date : 3 2018 Source : Epilepsia. 59(3):530-543 URL : https://stacks.cdc.gov/view/cdc/58028 Middleton, Owen et al. (2018). National Association of Medical Examiners position paper: Recommendations for the investigation and certification of deaths in people with epilepsy. 59(3). Middleton, Owen et al. "National Association of Medical Examiners position paper: Recommendations for the investigation and certification of deaths in people with epilepsy" 59, no. 3 (2018) Middleton, Owen et al. "National Association of Medical Examiners position paper: Recommendations for the investigation and certification of deaths in people with epilepsy" vol. 59, no. 3, 2018 Export RIS Citation Information.

:

Middleton, Owen ;

Atherton, Daniel

3 2018 | Epilepsia. 59(3):530-543

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Sudden unexpected death of an individual with epilepsy can pose a challenge to death investigators, as most deaths are unwitnessed, and the individual...
Epidemiology of traumatic brain injury-associated epilepsy and early use of anti-epilepsy drugs: An analysis of insurance claims data, 2004–2014

CITE Title : Epidemiology of traumatic brain injury-associated epilepsy and early use of anti-epilepsy drugs: An analysis of insurance claims data, 2004–2014 Personal Author(s) : DeGrauw, Xinyao;Thurman, David;Xu, Likang;Kancherla, Vijaya;DeGrauw, Ton; Published Date : 10 2018;10-2018; Source : Epilepsy Res. 146:41-49 URL : https://stacks.cdc.gov/view/cdc/81696 DeGrauw, Xinyao et al. (2018). Epidemiology of traumatic brain injury-associated epilepsy and early use of anti-epilepsy drugs: An analysis of insurance claims data, 2004–2014. 146 DeGrauw, Xinyao et al. "Epidemiology of traumatic brain injury-associated epilepsy and early use of anti-epilepsy drugs: An analysis of insurance claims data, 2004–2014" 146 (2018) DeGrauw, Xinyao et al. "Epidemiology of traumatic brain injury-associated epilepsy and early use of anti-epilepsy drugs: An analysis of insurance claims data, 2004–2014" vol. 146, 2018 Export RIS Citation Information.

:

DeGrauw, Xinyao ;

Thurman, David

10 2018 | Epilepsy Res. 146:41-49

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Background:About 2.8 million TBI-related emergency department visits, hospitalizations and deaths occurred in 2013 in the United States. Post-traumati...
Mortality and mortality disparities among people with epilepsy in the United States, 2011–2021

CITE Title : Mortality and mortality disparities among people with epilepsy in the United States, 2011–2021 Personal Author(s) : Tian, Niu;Kobau, Rosemarie;Friedman, Daniel;Liu, Yong;Eke, Paul I.;Greenlund, Kurt J.; Published Date : 6 2024;6-2024; Source : Epilepsy Behav. 155:109770 URL : https://stacks.cdc.gov/view/cdc/159458 Tian, Niu et al. (2024). Mortality and mortality disparities among people with epilepsy in the United States, 2011–2021. 155 Tian, Niu et al. "Mortality and mortality disparities among people with epilepsy in the United States, 2011–2021" 155 (2024) Tian, Niu et al. "Mortality and mortality disparities among people with epilepsy in the United States, 2011–2021" vol. 155, 2024 Export RIS Citation Information.

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Tian, Niu ;

Kobau, Rosemarie

6 2024 | Epilepsy Behav. 155:109770

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Studies on epilepsy mortality in the United States are limited. We used the National Vital Statistics System Multiple Cause of Death data to investiga...
Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey☆

CITE Title : Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey☆ Personal Author(s) : Cui, Wanjun;Zack, Matthew M.;Kobau, Rosemarie;Helmers, Sandra L.; Published Date : 3 2015 Source : Epilepsy Behav. 44:121-126 URL : https://stacks.cdc.gov/view/cdc/34580 Cui, Wanjun et al. (2015). Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey☆. 44 Cui, Wanjun et al. "Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey☆" 44 (2015) Cui, Wanjun et al. "Health behaviors among people with epilepsy—Results from the 2010 National Health Interview Survey☆" vol. 44, 2015 Export RIS Citation Information.

:

Cui, Wanjun ;

Zack, Matthew M.

3 2015 | Epilepsy Behav. 44:121-126

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ObjectivesThis study aimed to estimate and compare the prevalence of selected health behavior—alcohol use, cigarette smoking, physical activity, and...
Knowledge of and familiarity with epilepsy in U.S. adults: Results from the 2017 ConsumerStyles Online Panel Survey

CITE Title : Knowledge of and familiarity with epilepsy in U.S. adults: Results from the 2017 ConsumerStyles Online Panel Survey Personal Author(s) : Kobau, Rosemarie;Zack, Matthew M.; Published Date : 1 2021;1-2021; Source : Epilepsy Behav. 114(Pt A):107535 URL : https://stacks.cdc.gov/view/cdc/110324 Kobau, Rosemarie and Zack, Matthew M. (2021). Knowledge of and familiarity with epilepsy in U.S. adults: Results from the 2017 ConsumerStyles Online Panel Survey. 114 Kobau, Rosemarie and Zack, Matthew M. "Knowledge of and familiarity with epilepsy in U.S. adults: Results from the 2017 ConsumerStyles Online Panel Survey" 114 (2021) Kobau, Rosemarie and Zack, Matthew M. "Knowledge of and familiarity with epilepsy in U.S. adults: Results from the 2017 ConsumerStyles Online Panel Survey" vol. 114, 2021 Export RIS Citation Information.

:

Kobau, Rosemarie ;

Zack, Matthew M.

1 2021 | Epilepsy Behav. 114(Pt A):107535

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Examining and improving knowledge and attitudes about epilepsy has been a public health priority because of stigma around the disorder. This study had...
When and why US primary care providers do and do not refer their patients with new-onset seizures or existing epilepsy or seizure disorders to neurologists—2018 DocStyles

CITE Title : When and why US primary care providers do and do not refer their patients with new-onset seizures or existing epilepsy or seizure disorders to neurologists—2018 DocStyles Personal Author(s) : Kobau, Rosemarie;Zack, Matthew M.;Sapkota, Sanjeeb;Sajatovic, Martha;Kiriakopoulos, Elaine; Published Date : 12 2021;12-2021; Source : Epilepsy Behav. 125:108385 URL : https://stacks.cdc.gov/view/cdc/154717 Kobau, Rosemarie et al. (2021). When and why US primary care providers do and do not refer their patients with new-onset seizures or existing epilepsy or seizure disorders to neurologists—2018 DocStyles. 125 Kobau, Rosemarie et al. "When and why US primary care providers do and do not refer their patients with new-onset seizures or existing epilepsy or seizure disorders to neurologists—2018 DocStyles" 125 (2021) Kobau, Rosemarie et al. "When and why US primary care providers do and do not refer their patients with new-onset seizures or existing epilepsy or seizure disorders to neurologists—2018 DocStyles" vol. 125, 2021 Export RIS Citation Information.

:

Kobau, Rosemarie ;

Zack, Matthew M.

12 2021 | Epilepsy Behav. 125:108385

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Monitoring primary care providers' (PCP) attitudes and experiences with referrals of their patients with new-onset seizures or existing epilepsy/seizu...
Antiepileptic drug effects on subjective and objective cognition

CITE Title : Antiepileptic drug effects on subjective and objective cognition Personal Author(s) : Quon, Robert J.;Mazanec, Morgan T.;Schmidt, Samantha S.;Andrew, Angeline S.;Roth, Robert M.;MacKenzie, Todd A.;Sajatovic, Martha;Spruill, Tanya;Jobst, Barbara C.; Published Date : 3 2020;3-2020; Source : Epilepsy Behav. 104(Pt A):106906 URL : https://stacks.cdc.gov/view/cdc/162441 Quon, Robert J. et al. (2020). Antiepileptic drug effects on subjective and objective cognition. 104 Quon, Robert J. et al. "Antiepileptic drug effects on subjective and objective cognition" 104 (2020) Quon, Robert J. et al. "Antiepileptic drug effects on subjective and objective cognition" vol. 104, 2020 Export RIS Citation Information.

:

Quon, Robert J. ;

Mazanec, Morgan T.

3 2020 | Epilepsy Behav. 104(Pt A):106906

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Rationale:Cognitive impairment is one of the most common complaints for persons with epilepsy (PWE). These impairments are not only associated with se...
Depression self-management in people with epilepsy: Adapting project UPLIFT for underserved populations

CITE Title : Depression self-management in people with epilepsy: Adapting project UPLIFT for underserved populations Personal Author(s) : Quarells, Rakale C.;Spruill, Tanya M.;Escoffery, Cam;Shallcross, Amanda;Montesdeoca, Jacqueline;Diaz, Laura;Payano, Leydi;Thompson, Nancy J.; Published Date : 10 2019;10-2019; Source : Epilepsy Behav. 99:106422 URL : https://stacks.cdc.gov/view/cdc/92334 Quarells, Rakale C. et al. (2019). Depression self-management in people with epilepsy: Adapting project UPLIFT for underserved populations. 99 Quarells, Rakale C. et al. "Depression self-management in people with epilepsy: Adapting project UPLIFT for underserved populations" 99 (2019) Quarells, Rakale C. et al. "Depression self-management in people with epilepsy: Adapting project UPLIFT for underserved populations" vol. 99, 2019 Export RIS Citation Information.

:

Quarells, Rakale C. ;

Spruill, Tanya M.

10 2019 | Epilepsy Behav. 99:106422

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Data from the 2015 National Health Interview Survey found that the prevalence of active epilepsy has increased to three million adults. Although findi...