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Developing a public health-tracking system for follow-up of newborn screening metabolic conditions: a four-state pilot project structure and initial findings

CITE Title : Developing a public health-tracking system for follow-up of newborn screening metabolic conditions: a four-state pilot project structure and initial findings Personal Author(s) : Hinton, Cynthia F.;Mai, Cara T.;Nabukera, Sarah K.;Botto, Lorenzo D.;Feuchtbaum, Lisa;Romitti, Paul A.;Wang, Ying;Piper, Kimberly Noble;Olney, Richard S.; Published Date : Dec 05 2013 Source : Genet Med. 16(6):484-490. URL : https://stacks.cdc.gov/view/cdc/39626 Hinton, Cynthia F. et al. (2013). Developing a public health-tracking system for follow-up of newborn screening metabolic conditions: a four-state pilot project structure and initial findings. 16(6). Hinton, Cynthia F. et al. "Developing a public health-tracking system for follow-up of newborn screening metabolic conditions: a four-state pilot project structure and initial findings" 16, no. 6 (2013) Hinton, Cynthia F. et al. "Developing a public health-tracking system for follow-up of newborn screening metabolic conditions: a four-state pilot project structure and initial findings" vol. 16, no. 6, 2013 Export RIS Citation Information.

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Hinton, Cynthia F. ;

Mai, Cara T.

Dec 05 2013 | Genet Med. 16(6):484-490.

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PurposeThe aim of this study was to describe the methods, cases, and initial results of a pilot project using existing public health data collection p...
State-based surveillance for selected hemoglobinopathies

CITE Title : State-based surveillance for selected hemoglobinopathies Personal Author(s) : Hulihan, Mary M.;Feuchtbaum, Lisa;Jordan, Lanetta;Kirby, Russell S.;Snyder, Angela;Young, William;Greene, Yvonne;Telfair, Joseph;Wang, Ying;Cramer, William;Werner, Ellen M.;Kenney, Kristy;Creary, Melissa;Grant, Althea M.; Published Date : Jul 03 2014 Source : Genet Med. 17(2):125-130. URL : https://stacks.cdc.gov/view/cdc/31009 Hulihan, Mary M. et al. (2014). State-based surveillance for selected hemoglobinopathies. 17(2). Hulihan, Mary M. et al. "State-based surveillance for selected hemoglobinopathies" 17, no. 2 (2014) Hulihan, Mary M. et al. "State-based surveillance for selected hemoglobinopathies" vol. 17, no. 2, 2014 Export RIS Citation Information.

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Hulihan, Mary M. ;

Feuchtbaum, Lisa

Jul 03 2014 | Genet Med. 17(2):125-130.

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PurposeThe lack of an ongoing surveillance system for hemoglobinopathies in the United States impedes the ability of public health organizations to id...
A framework for assessing outcomes from newborn screening: on the road to measuring its promise

CITE Title : A framework for assessing outcomes from newborn screening: on the road to measuring its promise Personal Author(s) : Hinton, Cynthia F.;Homer, Charles J.;Thompson, Alexis A.;Williams, Andrea;Hassell, Kathryn L.;Feuchtbaum, Lisa;Berry, Susan A.;Comeau, Anne Marie;Therrell, Bradford L.;Brower, Amy;Harris, Katharine B.;Brown, Christine;Monaco, Jana;Ostrander, Robert J.;Zuckerman, Alan E.;Kaye, Celia;Dougherty, Denise;Greene, Carol;Green, Nancy S.; Corporate Authors(s) : Follow-up and Treatment Sub-committee of the Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) Published Date : 8 2016;8-2016; Source : Mol Genet Metab. 118(4):221-229 URL : https://stacks.cdc.gov/view/cdc/40666 Hinton, Cynthia F. et al. (2016). A framework for assessing outcomes from newborn screening: on the road to measuring its promise. 118(4). Hinton, Cynthia F. et al. "A framework for assessing outcomes from newborn screening: on the road to measuring its promise" 118, no. 4 (2016) Hinton, Cynthia F. et al. "A framework for assessing outcomes from newborn screening: on the road to measuring its promise" vol. 118, no. 4, 2016 Export RIS Citation Information.

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Hinton, Cynthia F. ;

Homer, Charles J.

8 2016 | Mol Genet Metab. 118(4):221-229

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Newborn screening (NBS) is intended to identify congenital conditions prior to the onset of symptoms in order to provide early intervention that leads...
Providers’ Perspectives on Treating Patients With Thalassemia

CITE Title : Providers’ Perspectives on Treating Patients With Thalassemia Personal Author(s) : Radke, Taylor;Paulukonis, Susan;Hulihan, Mary M.;Feuchtbaum, Lisa; Published Date : 10 2019 Source : J Pediatr Hematol Oncol. 41(7):e421-e426 URL : https://stacks.cdc.gov/view/cdc/108747 Radke, Taylor et al. (2019). Providers’ Perspectives on Treating Patients With Thalassemia. 41(7). Radke, Taylor et al. "Providers’ Perspectives on Treating Patients With Thalassemia" 41, no. 7 (2019) Radke, Taylor et al. "Providers’ Perspectives on Treating Patients With Thalassemia" vol. 41, no. 7, 2019 Export RIS Citation Information.

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Radke, Taylor ;

Paulukonis, Susan

10 2019 | J Pediatr Hematol Oncol. 41(7):e421-e426

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In recent years, California has experienced a steady rise in Asian immigration which has led to a corresponding increased prevalence of clinically sig...