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Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies

CITE Title : Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies Personal Author(s) : Soelaeman, Rieza H.;Smith, Michael G.;Sahay, Kashika;Tilford, J. Mick;Goodenough, Dana;Paramsothy, Pangaja;Ouyang, Lijing;Oleszek, Joyce;Grosse, Scott D.; Published Date : 12 2021 Source : Muscle Nerve. 64(6):717-725 URL : https://stacks.cdc.gov/view/cdc/111864 Soelaeman, Rieza H. et al. (2021). Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies. 64(6). Soelaeman, Rieza H. et al. "Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies" 64, no. 6 (2021) Soelaeman, Rieza H. et al. "Labor market participation and productivity costs for female caregivers of minor male children with Duchenne and Becker muscular dystrophies" vol. 64, no. 6, 2021 Export RIS Citation Information.

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Soelaeman, Rieza H.

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Smith, Michael G.

12 2021 | Muscle Nerve. 64(6):717-725

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Introduction/Aims:Duchenne and Becker muscular dystrophies (DBMD) are X-linked neuromuscular disorders characterized by progressive muscle weakness, l...
Left ventricular dysfunction in Duchenne muscular dystrophy

CITE Title : Left ventricular dysfunction in Duchenne muscular dystrophy Personal Author(s) : James, Katherine A.;Gralla, Jane;Ridall, Leslie A.;Do, ThuyQuynh N.;Czaja, Angela S.;Mourani, Peter M.;Ciafaloni, Emma;Cunniff, Christopher;Donnelly, Jennifer;Oleszek, Joyce;Pandya, Shree;Price, Elinora;Yang, Michele L.;Auerbach, Scott R.; Published Date : 2 2020;2-2020; Source : Cardiol Young. 30(2):171-176 URL : https://stacks.cdc.gov/view/cdc/115711 James, Katherine A. et al. (2020). Left ventricular dysfunction in Duchenne muscular dystrophy. 30(2). James, Katherine A. et al. "Left ventricular dysfunction in Duchenne muscular dystrophy" 30, no. 2 (2020) James, Katherine A. et al. "Left ventricular dysfunction in Duchenne muscular dystrophy" vol. 30, no. 2, 2020 Export RIS Citation Information.

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James, Katherine A. ;

Gralla, Jane

2 2020 | Cardiol Young. 30(2):171-176

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Background:Duchenne muscular dystrophy is associated with progressive cardiorespiratory failure, including left ventricular dysfunction.Methods and Re...
Bone Health and Endocrine Care of Boys with Duchenne Muscular Dystrophy: Data from the MD STARnet

CITE Title : Bone Health and Endocrine Care of Boys with Duchenne Muscular Dystrophy: Data from the MD STARnet Personal Author(s) : Weber, David R.;Thomas, Shiny;Erickson, Stephen W.;Fox, Deborah;Oleszek, Joyce;Pandya, Shree;Venkatesh, Yedatore;Westfield, Christina;Ciafaloni, Emma; Corporate Authors(s) : Muscular Dystrophy Tracking and Research Network (MD STARnet) Published Date : 2018;2018; Source : J Neuromuscul Dis. 5(4):497-507 URL : https://stacks.cdc.gov/view/cdc/61234 Weber, David R. et al. (2018). Bone Health and Endocrine Care of Boys with Duchenne Muscular Dystrophy: Data from the MD STARnet. 5(4). Weber, David R. et al. "Bone Health and Endocrine Care of Boys with Duchenne Muscular Dystrophy: Data from the MD STARnet" 5, no. 4 (2018) Weber, David R. et al. "Bone Health and Endocrine Care of Boys with Duchenne Muscular Dystrophy: Data from the MD STARnet" vol. 5, no. 4, 2018 Export RIS Citation Information.

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Weber, David R. ;

Thomas, Shiny

2018 | J Neuromuscul Dis. 5(4):497-507

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Background:Patients with Duchenne muscular dystrophy (DMD) are at high risk of endocrine and bone health complications resulting from the high glucoco...
Association of genetic mutations and loss of ambulation in childhood-onset dystrophinopathy

CITE Title : Association of genetic mutations and loss of ambulation in childhood-onset dystrophinopathy Personal Author(s) : Haber, Gregory;Conway, Kristin M.;Paramsothy, Pangaja;Roy, Anindya;Rogers, Hobart;Ling, Xiang;Kozauer, Nicholas;Street, Natalie;Romitti, Paul A.;Fox, Deborah J.;Phan, Han C.;Matthews, Dennis;Ciafaloni, Emma;Oleszek, Joyce;James, Katherine A.;Galindo, Maureen;Whitehead, Nedra;Johnson, Nicholas;Butterfield, Russell J.;Pandya, Shree;Venkatesh, Swamy;Bhattaram, Venkatesh Atul; Published Date : 2 2021 Source : Muscle Nerve. 63(2):181-191 URL : https://stacks.cdc.gov/view/cdc/105954 Haber, Gregory et al. (2021). Association of genetic mutations and loss of ambulation in childhood-onset dystrophinopathy. 63(2). Haber, Gregory et al. "Association of genetic mutations and loss of ambulation in childhood-onset dystrophinopathy" 63, no. 2 (2021) Haber, Gregory et al. "Association of genetic mutations and loss of ambulation in childhood-onset dystrophinopathy" vol. 63, no. 2, 2021 Export RIS Citation Information.

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Haber, Gregory ;

Conway, Kristin M.

2 2021 | Muscle Nerve. 63(2):181-191

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IntroductionQuantifying associations between genetic mutations and loss of ambulation (LoA) among males diagnosed with childhood-onset dystrophinopath...
Health Profile of Preterm Males With Duchenne Muscular Dystrophy

CITE Title : Health Profile of Preterm Males With Duchenne Muscular Dystrophy Personal Author(s) : Soim, Aida;Wallace, Bailey;Whitehead, Nedra;Smith, Michael G.;Mann, Joshua R.;Thomas, Shiny;Ciafaloni, Emma; Corporate Authors(s) : Muscular Dystrophy Surveillance, Tracking, and Research Network (MD STARnet) Published Date : 10 2021;10-2021; Source : J Child Neurol. 36(12):1095-1102 URL : https://stacks.cdc.gov/view/cdc/151673 Soim, Aida et al. (2021). Health Profile of Preterm Males With Duchenne Muscular Dystrophy. 36(12). Soim, Aida et al. "Health Profile of Preterm Males With Duchenne Muscular Dystrophy" 36, no. 12 (2021) Soim, Aida et al. "Health Profile of Preterm Males With Duchenne Muscular Dystrophy" vol. 36, no. 12, 2021 Export RIS Citation Information.

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Soim, Aida

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Wallace, Bailey

10 2021 | J Child Neurol. 36(12):1095-1102

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In this retrospective cohort study, we characterize the health profile of preterm males with Duchenne muscular dystrophy. Major clinical milestones (a...
SIBLING CONCORDANCE FOR CLINICAL FEATURES OF DUCHENNE AND BECKER MUSCULAR DYSTROPHIES

CITE Title : SIBLING CONCORDANCE FOR CLINICAL FEATURES OF DUCHENNE AND BECKER MUSCULAR DYSTROPHIES Personal Author(s) : PETTYGROVE, SYDNEY;LU, ZHENQIANG;ANDREWS, JENNIFER G.;MEANEY, F. JOHN;SHEEHAN, DANIEL W.;PRICE, ELINORA T.;FOX, DEBORAH J.;PANDYA, SHREE;OUYANG, LIJING;APKON, SUSAN D.;POWIS, ZOE;CUNNIFF, CHRISTOPHER; Published Date : 6 2014;6-2014; Source : Muscle Nerve. 2013; 49(6):814-821 URL : https://stacks.cdc.gov/view/cdc/31762 PETTYGROVE, SYDNEY et al. (2014). SIBLING CONCORDANCE FOR CLINICAL FEATURES OF DUCHENNE AND BECKER MUSCULAR DYSTROPHIES. 49(6). PETTYGROVE, SYDNEY et al. "SIBLING CONCORDANCE FOR CLINICAL FEATURES OF DUCHENNE AND BECKER MUSCULAR DYSTROPHIES" 49, no. 6 (2014) PETTYGROVE, SYDNEY et al. "SIBLING CONCORDANCE FOR CLINICAL FEATURES OF DUCHENNE AND BECKER MUSCULAR DYSTROPHIES" vol. 49, no. 6, 2014 Export RIS Citation Information.

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PETTYGROVE, SYDNEY ;

LU, ZHENQIANG

6 2014 | Muscle Nerve. 2013; 49(6):814-821

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IntroductionThe correlation of markers of disease severity among brothers with Duchenne or Becker muscular dystrophy has implications for clinical gui...
Selected clinical and demographic factors and all-cause mortality among individuals with Duchenne muscular dystrophy in the Muscular Dystrophy Surveillance, Tracking, and Research Network

CITE Title : Selected clinical and demographic factors and all-cause mortality among individuals with Duchenne muscular dystrophy in the Muscular Dystrophy Surveillance, Tracking, and Research Network Personal Author(s) : Paramsothy, Pangaja;Wang, Yinding;Cai, Bo;Conway, Kristin M.;Johnson, Nicholas E.;Pandya, Shree;Ciafaloni, Emma;Mathews, Katherine D.;Romitti, Paul A.;Howard, James F.;Riley, Catharine; Published Date : 6 2022 Source : Neuromuscul Disord. 32(6):468-476 URL : https://stacks.cdc.gov/view/cdc/119297 Paramsothy, Pangaja et al. (2022). Selected clinical and demographic factors and all-cause mortality among individuals with Duchenne muscular dystrophy in the Muscular Dystrophy Surveillance, Tracking, and Research Network. 32(6). Paramsothy, Pangaja et al. "Selected clinical and demographic factors and all-cause mortality among individuals with Duchenne muscular dystrophy in the Muscular Dystrophy Surveillance, Tracking, and Research Network" 32, no. 6 (2022) Paramsothy, Pangaja et al. "Selected clinical and demographic factors and all-cause mortality among individuals with Duchenne muscular dystrophy in the Muscular Dystrophy Surveillance, Tracking, and Research Network" vol. 32, no. 6, 2022 Export RIS Citation Information.

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Paramsothy, Pangaja ;

Wang, Yinding

6 2022 | Neuromuscul Disord. 32(6):468-476

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Population-based estimates of survival among individuals with Duchenne muscular dystrophy (DMD) living in the United States are lacking. It is also un...
Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies

CITE Title : Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies Personal Author(s) : Conway, Kristin M;Ciafaloni, Emma;Matthews, Dennis;Westfield, Chris;James, Kathy;Paramsothy, Pangaja;Romitti, Paul A; Published Date : 7 2018;7-2018; Source : Disabil Rehabil. 40(15):1773-1780 URL : https://stacks.cdc.gov/view/cdc/49120 Conway, Kristin M et al. (2018). Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies. 40(15). Conway, Kristin M et al. "Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies" 40, no. 15 (2018) Conway, Kristin M et al. "Application of the International Classification of Functioning, Disability and Health System to symptoms of Duchenne and Becker muscular dystrophies" vol. 40, no. 15, 2018 Export RIS Citation Information.

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Conway, Kristin M ;

Ciafaloni, Emma

7 2018 | Disabil Rehabil. 40(15):1773-1780

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PurposeDuchenne and Becker muscular dystrophies, collectively referred to as dystrophinopathies, are X-linked recessive diseases that affect dystrophi...
Role attainment in emerging adulthood: subjective evaluation by male adolescents and adults with Duchenne and Becker muscular dystrophy

CITE Title : Role attainment in emerging adulthood: subjective evaluation by male adolescents and adults with Duchenne and Becker muscular dystrophy Personal Author(s) : Peay, Holly L;Do, Barbara T.;Khosla, Neil;Paramsothy, Pangaja;Erickson, Stephen W;Lamb, Molly M.;Whitehead, Nedra;Fox, Deborah J.;Pandya, Shree;Kinnett, Kathi;Wolff, Jodi;Howard, James F; Published Date : 2022 Source : J Neuromuscul Dis. 9(3):447-456 URL : https://stacks.cdc.gov/view/cdc/117710 Peay, Holly L et al. (2022). Role attainment in emerging adulthood: subjective evaluation by male adolescents and adults with Duchenne and Becker muscular dystrophy. 9(3). Peay, Holly L et al. "Role attainment in emerging adulthood: subjective evaluation by male adolescents and adults with Duchenne and Becker muscular dystrophy" 9, no. 3 (2022) Peay, Holly L et al. "Role attainment in emerging adulthood: subjective evaluation by male adolescents and adults with Duchenne and Becker muscular dystrophy" vol. 9, no. 3, 2022 Export RIS Citation Information.

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Peay, Holly L ;

Do, Barbara T.

2022 | J Neuromuscul Dis. 9(3):447-456

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Background:Youth with Duchenne and Becker muscular dystrophy (DBMD) experience challenges in attaining adult roles, which may impact quality of life. ...
Evaluation of effects of continued corticosteroid treatment on cardiac and pulmonary function in non-ambulatory males with Duchenne Muscular Dystrophy from MD STARnet

CITE Title : Evaluation of effects of continued corticosteroid treatment on cardiac and pulmonary function in non-ambulatory males with Duchenne Muscular Dystrophy from MD STARnet Personal Author(s) : Butterfield, Russell J;Krikov, Sergey;Conway, Kristin M.;Johnson, Nicholas;Matthews, Dennis;Phan, Han;Cai, Bo;Paramsothy, Pangaja;Thomas, Shiny;Feldkamp, Marcia L.; Published Date : 7 2022;7-2022; Source : Muscle Nerve. 66(1):15-23 URL : https://stacks.cdc.gov/view/cdc/118369 Butterfield, Russell J et al. (2022). Evaluation of effects of continued corticosteroid treatment on cardiac and pulmonary function in non-ambulatory males with Duchenne Muscular Dystrophy from MD STARnet. 66(1). Butterfield, Russell J et al. "Evaluation of effects of continued corticosteroid treatment on cardiac and pulmonary function in non-ambulatory males with Duchenne Muscular Dystrophy from MD STARnet" 66, no. 1 (2022) Butterfield, Russell J et al. "Evaluation of effects of continued corticosteroid treatment on cardiac and pulmonary function in non-ambulatory males with Duchenne Muscular Dystrophy from MD STARnet" vol. 66, no. 1, 2022 Export RIS Citation Information.

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Butterfield, Russell J ;

Krikov, Sergey

7 2022 | Muscle Nerve. 66(1):15-23

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Introduction/Aims:Corticosteroids have been shown to improve muscle strength and delay loss of ambulation (LOA) in Duchenne muscular dystrophy (DMD) a...
Duchenne and Becker Muscular Dystrophies Prevalence in MD STARnet surveillance sites: An Examination of Racial and Ethnic Differences

CITE Title : Duchenne and Becker Muscular Dystrophies Prevalence in MD STARnet surveillance sites: An Examination of Racial and Ethnic Differences Personal Author(s) : Zhang, Yanan;Mann, Joshua R.;James, Katherine A.;McDermott, Suzanne;Conway, Kristin M.;Paramsothy, Pangaja;Smith, Tiffany;Cai, Bo; Corporate Authors(s) : MD STARnet Published Date : 2021;2021; Source : Neuroepidemiology. 55(1):47-55 URL : https://stacks.cdc.gov/view/cdc/105274 Zhang, Yanan et al. (2021). Duchenne and Becker Muscular Dystrophies Prevalence in MD STARnet surveillance sites: An Examination of Racial and Ethnic Differences. 55(1). Zhang, Yanan et al. "Duchenne and Becker Muscular Dystrophies Prevalence in MD STARnet surveillance sites: An Examination of Racial and Ethnic Differences" 55, no. 1 (2021) Zhang, Yanan et al. "Duchenne and Becker Muscular Dystrophies Prevalence in MD STARnet surveillance sites: An Examination of Racial and Ethnic Differences" vol. 55, no. 1, 2021 Export RIS Citation Information.

:

Zhang, Yanan ;

Mann, Joshua R.

2021 | Neuroepidemiology. 55(1):47-55

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Introduction:Previous studies indicated variability in the prevalence of Duchenne and Becker muscular dystrophies (DBMD) by racial/ethnic groups. The ...
Racial and ethnic differences in timing of diagnosis and clinical services received in Duchenne Muscular Dystrophy

CITE Title : Racial and ethnic differences in timing of diagnosis and clinical services received in Duchenne Muscular Dystrophy Personal Author(s) : Mann, Joshua;Zhang, Yanan;McDermott, Suzanne;Wang, Yinding;Cai, Bo;Conway, Kristin M.;Paramsothy, Pangaja;Royer, Julie;Venkatesh, Swamy;Howard, James F.;Ciafaloni, Emma; Corporate Authors(s) : MD STARnet Published Date : 5 2023;2023; Source : Neuroepidemiology. 57(2):90-99 URL : https://stacks.cdc.gov/view/cdc/130839 Mann, Joshua et al. (2023). Racial and ethnic differences in timing of diagnosis and clinical services received in Duchenne Muscular Dystrophy. 57(2). Mann, Joshua et al. "Racial and ethnic differences in timing of diagnosis and clinical services received in Duchenne Muscular Dystrophy" 57, no. 2 (2023) Mann, Joshua et al. "Racial and ethnic differences in timing of diagnosis and clinical services received in Duchenne Muscular Dystrophy" vol. 57, no. 2, 2023 Export RIS Citation Information.

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Mann, Joshua ;

Zhang, Yanan

5 2023 | Neuroepidemiology. 57(2):90-99

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Introduction:Racial/ethnic differences in diagnostic and treatment services have been identified for a range of health conditions and outcomes. The cu...